I just found out that a very good friend of mine's newborn may have Williamson's Disease. I have very little knowledge of this disease but I know that they are facing an open heart surgery. I just wanted to ask other mom's out there that have dealt with this in their own lives for any words of wisdom, advice and/or resources that they have come accross. Also, as a friend, what can I do to help?
(PS I didn't mean to list this under tourettes syndrome)
Nicole