Trauma Induced Seizure?

Updated on November 22, 2008
R.S. asks from Santa Monica, CA
8 answers

I'm wondering if anyone out there has any experience or suggestions for coping with this issue. My 2 1/2 year old son has had two head "injuries" in the past 3 months that ended up in seizing, loss of consciousness, and trips to the ER. I met with our pediatrician yesterday and have an appointment with a pediatric neurologist in two weeks but could use some support if anyone else has gone through this. During the first accident my brother in law dropped him on his head while spinning him around and yesterday he tripped on a ball at gym class and fell back and hit his head. Both have been totally freak, yet not uncommon incidents for active toddlers. At the same time, both incidents were the scariest moments of my life and now I'm a total wreck feeling like I have to shadow him all day long and not allow him to do anything (climb on the couch, walk up the stairs, run on the sidewalk, etc.) The ER doctor said that both incidents could be "trauma induced seizures" but to get him checked out for further issues, which is what we're doing. In the meantime I'm going crazy wondering what could possibly be wrong and how to cope now. Any feedback would be greatly appreciated.

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So What Happened?

So, we went to our pediatric neurologist today. Before we went my husband was able to ask around from other UCLA and prominent Santa Monica doctors who assured us that she is really one of the best, so we felt really good with her opinion. Anyway, she says there is no reason to do any further tests (other than the 2 cat scans and EEG that he had in the ER) because she is 99% sure that my son does not have any seizure disorder, like epilepsy. She does not think that either of the circumstances will be a factor in the development of epilepsy as an adult either. Basically she said that some kids (and even adults for that matter) are prone to seizures with a head injury. With kids, I guess they are likely to "grow out of it" (a phrase I'm so sick of hearing) by the age of 5 or 6. Since both seizures were "impact induced" there is no medicine that will ever prevent it, and our only goal now is to prevent "impact" on his head...something we haven't had a lot of luck with in his 2 1/2 years and probably 25 serious falls. She told us that its likely it may happen again (until he "grows out of it") and just further prepped us on how to handle it.

So, our new goal is to keep him as safe as possible while still allowing him to be the active, adventurous little toddler he is. I'm sure he'll be fine, we're just trying not to be neurotic control freaks. Thanks for the great comments and suggestions, its nice to hear from people who have gone through the same thing.

More Answers

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T.C.

answers from Los Angeles on

Dear R.,

This happened to my 3 year old as well (he is now 8). My husband and him were trying to swat at a fly that was in the house. My husband accidentally hit a wooden valance on the top of our window blinds and it fell off and hit my son in the temple area. The wood wasn't heavy at all and my son barely cried. He did have a little bump, but everything looked ok and we didn't think anything of it. 2 mornings later my son came into my room crying saying he felt sick. He crawled into bed with me and was acting strange. He wet himself and lost consciousness as well. I called 911 and he was immediately rushed to the ER. They also said it was a trauma induced seizure. We took him to CHOC for head scans and tests. They all appeared completely normal. Since then we have been paranoid of any head injuries. He has had a few minor mishaps since then, but no more seizures. The CHOC doctor told us that some children are more prone to trauma induced seizures than others. We still worry to this day, but everything has been fine. He is now 8 and in perfect health. I am sorry you are going through that. It was THE scariest thing I have ever experienced and I can feel your stress. I hope thing work out for the best. I wish I had some "advice" to give. I guess I just wanted to let you know that I have been through it and if you need to talk I am here.

T. Child

1 mom found this helpful
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R.A.

answers from San Diego on

No worries, take a deep breath and try to relax a little. I actually went through a very similar thing myself. I sustained some head injuries as a teenager that resulted in some seizures and black outs. I was diagnosed by a pediatric neurologists as having trauma induced epilepsy. I was medicated for a while to control my seizures. I have been off medication and seizure free for almost 9 years now. I know this is very scary, more so for you than your son, as he isn't old enough to really know what is going on. I would love to answer any questions I can, or share more about my personal experience if you would like to hear it. Please feel free to contact me.

1 mom found this helpful
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D.M.

answers from Los Angeles on

Check out www.handle.org They work with all kinds of brain trauma and all neurological disorders. After your child is evaluated the screeners will provide low tech exercises to rebuild the neuropathways that have been damaged or weaken from brain trauma. The HANDLE Institute methods work very effectively.
D. Merlin
Mother/Author
www.victoryoveradhd.com

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D.L.

answers from Reno on

Hi, R.. I'm so sorry for what you're going through. Seizures are really scary. First, make sure you have a great ped neurologist ("PN"). Ask around. If you have questions or doubts about anything, get a second opinion. With my son, we did MRIs, CT scan, EKGs. (The PN can do this in his office.) These will show whether your son is having abnormal activity, seizures, and what type (seizures vs. epilepsy). After the tests, you'll have a better idea of which treatments, if any, are necessary. If you want more information or support, or have questions, please feel free to email me. I'm glad to share our experience(s).

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J.B.

answers from Los Angeles on

i have never dealt with that (my daughter is a breath holder) but let him be a kid just tell him to be careful while he plays. i know it must be terrifying to see it happening but you may end up making your son fear playing in general. i would wait to see what the nuerologist says. good luck!

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A.G.

answers from Los Angeles on

R.,
When a child falls on there head it can affect the alignment of the cranial bones and cervical spine which can put a lot of extra stress on nerves which can in turn effect how the body functions. It would be a great idea to take him to see a chiropractor who specializes in pediatric work. I would be happy to talk to you more about your situation and/or refer you to someone in your area.
Dr A. Grob
Chiropractor - Southbay
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V.M.

answers from Los Angeles on

Do all the tests MD can offer, just don't go for the meds. See homeopath instead to have current problem resolved and future ones to be prevented.
V.

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S.B.

answers from Visalia on

Hi R.,

How scarey! My heart aches for both of you! Did he seize right at the time of injury both times? Has he had any other seizures any other time? I guess what I am thinking is did he start to seize and thats why he tripped on the ball? Or did he just trip on the ball and the fall caused the seizure. Did he have any other curious symptoms/behavior before the first accident? Like lack of eye contact, flapping, speech issues, over interest in spinning toys. Autism and seizures often times go hand in hand. I don't want you to jump the gun and freak out just go through the check lists of what else can cause seizures. My son got very late diagnosis of ASD and I feel as though we lost valuable time in his recovery. Just keep your Columbo hat on and be a detective to figure this out. Tell yourself you are on a fact finding mission. You are his mom and your intincts are often times much more valuable then Doctors and tests! Trust you mommy gut! If you would like any more info I can be reached at ____@____.com.
Blessings,
S.

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