Toddler Has Esotropia-- Surgery the Only Fix?

Updated on June 01, 2011
H.M. asks from Columbia, MO
4 answers

Hey Mamas,
Thank you for hanging in there with me while I go on this journey with my 3-year-old and her crossed eyes. The plot thickens. As I mentioned in my last few postings, one of her eyes has been wandering inward for several months now. After getting her checked out by an optometrist in the area and finding nothing wrong, I decided to take her to an ophthamologist for another opinion. Her eyes were crossing quite frequently by that time and she was having double and triple vision.

The Ophthamologist took a look at her and noted that her left eye was crossing from time to time and prescribed drops that would dilate her right eye which would in turn make her left eye stronger. Well, the drops worked, her left eye did get stronger, but her right eye got weaker and started to cross about a month into the therapy. We returned to the ophthamologist for her six-week checkup last week. The doctor noted her right eye wandering in now and said that she had Esotropia and the only way to fix it is with surgery since the weaker eye will always wander in. He said drops, patching and glasses won't help this condition and if we don't go ahead and get the surgery then we're prolonging the inevitable.

I've talked to a few other doctors and they all say that the procedure that the Ophthamologist is recommending is a very standard, out-patient procedure that will correct the problem with little discomfort. But...still...it's surgery! I've contacted the only visual therapist in our area to see about a consultation, so we'll be doing that this week. My question for you is...have any of you avoided this surgery and opted for visual therapy? If so, did it work? What I don't want to do is get her in therapy and find out that it can't fix the problem and we still need to do the surgery. Or worse, the therapy doesn't work and her eyes get worse and she suffers from this condition for the rest of her life.

I want to fix this problem in the best way we can. I'm not concerned about the cost of the therapy or the surgery, I just want to do the best thing for my daughter. If you have any experience with this surgery or visual therapy, please let me know.

Thank you so much!
H.

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D.B.

answers from Los Angeles on

My daughter had eye surgery when she was 7/8yo for strabismus (esotropia is a simular form). It was outpatient and pretty fast. Dr.s typically work on the youngest patients first thing in the morning so they aren't still around for half the day being hungry (there's a mandatory 8-12hour fasting that is easy to do over night - just don't give breakfast in the morning and you're set!). Given her age she wasn't the first one, but she was in just before lunch. Prep mostly included a bit of tape above the eye she was to have surgery on and (if i remember right) she was given one pain med to prep for surgery - get it into her system so she didn't hurt as much as she "woke up" - and that made her feeling silly and a bit clumsy. I was with her up until they wheeled her back to "smell the funny mask". The nurses were great and even asked her what flavor she wanted.

The first hour or two after the surgery are probably the roughest, because the stitches inside the eye are bothersome. My daughter was given some heavy duty pain killers at the clinic before being sent home about 3pm-ish. I rode in the backseat with her while hubby drove us all home although we did stop for milkshakes. She slept most of the rest of that day.

Had a checkup a couple days later and then again a 4 or 6 weeks (?) after that to make sure things were still ok. The stitches eventually dissolve and the irritation is gone by the end of the first week. My daughter's eye was red for a little over two weeks (all her classmates thought it was cool! lol), and whenever she did cry those first couple of days the tears were red tinted. Dr's orders were no swimming, stay at home and take it easy for those first two weeks.

I think the hardest part was hearing her actually wake up on the nurses (They wouldn't let me back there until she had spent a few minutes "awake" from the general anesthesia.) She's always been one to fight everyone unless I or her father is there to calm her and she literally came awake and screamed. I think we ended up staying an extra hour because she really worked herself up into a fit and they wouldn't/couldn't send her home until they had good normal vital signs from her (normal procedure).

We had done visual therapy for years... But she also has infantile/congenital nystagmus, so that really complicated every non-surgical intervention we tried to do. I would think if your daughter's case is severe enough, I would go ahead and opt for surgery instead of trying to spend so much time and effort on something that might or might not work.

feel free to message if there's other questions. hope that helps!

1 mom found this helpful
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J.S.

answers from Las Vegas on

I do not know anything about your problem with your child, but i do know that you can not but a price on your childs well being. Keep doing research, and while she is young she will not remember this surgery. I had to have surgery twice on my little one when he was only a few months old, yes it is heart breaking for us as parents, but he had to have the surgeries. since you have to pay for it anyway, find the best of the best and have it done. Everything you do now, will reflect on her in the future. 3 or 4 opinions are good too. But if the vast majority are saying this is what she needs, well there's your sign. You know in your heart what needs to be done. Good luck to you and your daughter.

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R.S.

answers from San Antonio on

We chose to do the surgery...she had just turned three years old and her vision was still unaffected by the turning of her eyes. She didn't need glasses as her vision was fine. Patches are to help strengths a weak eye not sending signals to the brain...she was still seeing fine with both eyes. And exercises were not going to work...how do you each them to a two almost three year old.

It was an out patient procedure...we found a doctor who specialized in strabismus and amboplia (I can never spell those correctly). It was literally the only surgery he does is to correct that specific problem. He was wonderful.

I would make the same decision again in a heartbeat. Good luck with your decision. You can pm me if you want to.

S.L.

answers from Kansas City on

My aunt is now 76 years old but as a child she had this and later in life her eye turned so bad you couldn't tell if she was looking at you or not and finally she had surgery and it fixed the eye but her vision is not pretty much gone in that eye and probably would have been fine if she'd had it done as a child. I think in her childhood years they did exercises or nothing pretty much. So if it was my child I think I would do it now while they're young but on the other hand I hate to see anyone put out with anesthesia but if it has to be done it will be best to do it now. Just be sure you have a good doctor and maybe a second opinion if you'd feel better doing that.

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