Seeking Advice - Douglasville,GA

My yougest was born with erb's palsy I went to a pediatric neuro. I would consider getting a check up with that type of doctor. I also went to the Shriners for assistance but now the children's hosp Eagleston has an erb's palsy unit. I don't know anything about your son's condition but I do know this even stroke patents get some type of phsy therapy to help move the muscles and work with the muscles losing any form at all. I can't imagine not having some type of therapy for him even if surgery is the only way to go with a situation. You are your child's only advocate your doctor is human and I if it was me would get another opinion about his condition....I did the same for my child because I wanted to years later tell him I did everything in my power to help you...and I did. He is doing better without surgery he is one of the few and he had phsy therapy for his limp arm so that atraphey would not set in his muscles. In fact I'd get more the n one opinion and call the shriners hosp look them up on line I didn't need a referral as another lady had said she did. Do your research there for a start if fact if you need a ride they will make arrignments to get you to all of your appointments. I started out first calling a local shiner number to get info I had no computer at the time, you must or you couldn't post and you have lots of info at your finger tips. My best wishes to you.

Hello B.,

You can try taking him to a chiropractor I work for Life University and we have an outpatient clinic in Marietta you can give us a call at ###-###-####

Please take your son to a Chiropractor! They are neurological specialist! He would certainly benefit from this treatment, no doubt! It is the LEAST invasive thing you can do for him, the Chiropractor will lead you from there if he needs any further treatment. Best of luck to you guys!

Hi B.,

The best physical therapy you can get is from a good, Upper Cervical Chiropractor. Go to upcspine.com for a list of someone in your area. Chiropractors don't just work with "back problems" but are truly the best physical therapists, neurologists, immunologists,and general practitioners that I know. I know there are variables with radial ulnar synostosis but a healthy immune system, a strong healthy body and a doctor that wants to see improvement is something that every mother craves for their child.

I have seen so many benefits from chiropractic in my family that I pray the same for you!

God bless!

M.

Did the DR. mention possibly going to Shriners Hospital? I would ask since you do need a referral. And there is no cost to you. My son has gone there for a problem with his hip since he was 5 (now 14). Started out with visits every 6 months for a while, but now we only go every 2 years. Check it out. Good Luck!

B., this article may help you. See a specialist, and get other opinions. Compensating now, will lead to further problems.

http://www.mayoclinic.org/medical-edge-newspaper-2008/apr..., Additional Screening Helpful With Ulnar Synostosis

I am a pediatric occupational therapist, and would suggest you get a referral/prescription from your doctor for an OT assesssment. An OT will assess his current level of function (strength, range of motion) and recommend either exercises or adaptive equipment that will help make doing everyday activities easier. It might be a good idea to have the assessment on record to monitor any gain/loss of function in the future.

If he attends public school, you may be able to get OT services there, but I'd starting asking about that now, as it can be a very slow process.

If it turns out that he needs surgery, he will end up getting OT afterwards, so it might be a good idea to have a relationship with a therapist you like before you get to that point.

Good luck with this--I will keep your son in my prayers! Let me know if I can be of further help.

Laura

PS--check out www.abilitations.com or www.therapro.com for some great adaptive equipment--there are many products that could make a difference for your son, and some great "toys" that will help improve his function.

I would check out this article to make sure other screenings are done as needed. http://www.mayoclinic.org/medical-edge-newspaper-2008/apr.... I am a physical therapist and I would recommend seeing an occupational therapist (pediatric) to help him find the best way to complete tasks that he has trouble with.

Hi B.,

I would go see an Occupational Therapist who specializes in Hand Therapy. You need a prescription from the dr to get an evaluation but it would be worth it, the therapist can show you some exercises or things to do to help on a daily basis.
I'm an OT but am not currently practicing as I'm at home with my 2 kids.
K.

B.- I would either ask your Pediatrician for a consult to a Occupational Therapist or possibly a Physical Therapist. Both of them could explain exercises or alternative means to accomplish daily tasks. It could give you both a jump off point and you could make a game of the exercises! Hope that helps!

I Googled this and from what I've read, you either do nothing or there is sugery for it. I guess it depends on the severity of lack of movement. Here is a link that I read that is pretty simple to understand what they are talking about. If you feel your son's DR is leaving you in the dark, you need to make an appointment with him so you can be clear as to what is going on, the treatment options and why his DR wants to only moniter him for now.

http://www.childrenshospital.org/az/Site1067/mainpageS106...

Good luck!
S.

My 4 year old son has partial paralysis on right side from a brain tumor and he goes to Pediatric Rehab for Physical Therapy. His therapist is Katherine Stubbs and she is excellent. It is located in the building Pediatric After Hours is. Good luck and I hope this helps.