Porencephallic Cyst Diangnosed in Utero at 35 Weeks...

Hi there. I am a pediatric PT In Early Intervention. While I don't have any experience with your son's specific diagnosis I can tell you with hydropcephallus the outcomes vary from normal to very delayed. One thing you can do early on is get Early Intervention Services. He will be automatically eligible for services because of his diagnosis. A team will come out an evaluate him. If he is doing fine they will come back out every 3-6 months(whatever you and the team decide) to re-evaluate him and start services as/if needed. It's nice to start early because they can tell you things to watch for and often you can have the same team come out each time so they know your child. Feel free to send me a private message if I can answer any more questions for you-Julie

Just my thoughts...My prayers will be with your family. Mommy G discussed the Early Intervention program...It is a wonderful program...My son has been in the EI for a year for muscle development and it has done wonders. While I know your case is very different your pediatrician should be able to provide you the phone number to get connected. If you need a phone number let me know.

Hi while i dont have experience with your little ones diagnosis I do have a son who had the cord tied around his neck 2x when he was born. He suffered from a lack of oxygen and it did cause some brain damage. While It has been a lot of therapy and special ed basically they are teaching different parts of his brain to do what the damaged parts are supposed to do. I would make sure you have great therapist and teachers around him and he will blossom. Maybe not like all the other kids but in his own way. My son is a truly a blessing no matter what his problems are he is one in a million and has taught me so much about life and helped me grow as a person. I still dont know how his future will turn out. But I have learned to accept it and take it day by day and truly enjoy this little miracle I have. I wish you and your family the best.

Hi R.,
I wish I had more specific info for you, but 2 suggestions: Google and see if there is a foundation or group website that addresses these issues. You can communicate with other parents of children with same or similar conditions this way. Also ask your MD for recommendations. S/he might have some suggestions and/or know other patients with a similar diagnosis that they could forward your contact information to.

So sorry you are going through this. Your baby is lucky to have such proactive parents looking out for his best interest. I know parents of kids with varying levels of disabilities and the one thing they all have in common is that they adore their kids and those kids are thriving. All the best to you and your family.

I do not have any experience...but wanted to offer you my thoughts and prayers. It must be very scary, the unknown of it all! Keep us posted about your little guy!
K.

I am sure this has been very scary for you - but I can just tell by your post that this little one was meant for you....you will be awesome.

Thinking of you....

Like everyone else, I'll be thinking of & praying for you & your little guy & I agree with Googling for organizations for this sort of thing, getting lots of info at the hospital & as a mother of 2 boys who have gone through Early Intervention, I loved the program.