P.M.
The State of Texas has a program called "Children with Special Health Care Needs" (CSHCN). You have to qualify, which it sounds like with your medical bills you would, and then they will help with expenses such as medical bills, hotel costs, travel expenses, etc. even if you have insurance. If you will e-mail me directly at ____@____.com, I will give you the name and phone number of someone you can contact.