G.P.
I found this on the web. DrGreen.com
There is a test that can be done to determine if your son has "inborn Errors of Metabolism". Once determined dietary changes can help greatly.
Your son is a fighter and wants very much to be here and it is amazing how incredible the human body is at eeking out every speck of nutrition in our food. Go organic and non-invasive muscle testing for food allergies. I don't believe in western drugs because of the side effects. Wholistic herbs and naturapathic doctors can be found in Santa Cruz. Give all the love you have and maybe this info. will help. I believe in your sons wholeness and there is no such thing as in incurable dis-ease. Have no fear.
Gale
(energetic body worker-massage therapist)
Meet Dr. Greene DrGreene.com
caring for the next generation
Inborn Errors of Metabolism
Some of my most heart-rending experiences as a physician and as a friend have been watching the devastation caused by inborn errors of metabolism. This group of 30 individually rare disorders can cause mental retardation, coma, or death. Many of these disorders can be treated with something as simple as a dietary change -- if you know which disease a child has soon enough. Previously, testing for each of these conditions was too complicated and expensive to be practical. Now there is a screening test that costs only $19-$25, and can spare families the ravages of undiagnosed inborn errors of metabolism.
The states of Massachusetts and North Carolina already require that parents be offered the option of the new tests. I encourage parents living elsewhere to arrange for testing themselves. If the tests are not available locally, ask your doctor to call Neo Gen Screening ###-###-####) or Baylor University Medical Center (800-422-9567). The test simply involves taking a little extra blood at the time of the routine heel-stick for newborn screening.
You also might want to visit a poignant website called the Tyler for Life Foundation. The creators are parents of a baby who died of an inborn error of metabolism six days after birth.
Alan Greene MD FAAP
January 24, 2000