I know this topic isn't recent, but I am compelled to share our experience here. Years ago when I came searching online for others going through this I couldn't find one. My daughter, now 11, had urinary tract reflux. It's been over a year since she had the surgery, she was at 4th level, and for a long time it went misdiagnosed though clear to me there was something very wrong. The first sign was heavy, constant, bedwetting. When I first brought it up to her Dr. it was overlooked during potty training, but the bedwetting never ended. Then there were the endless UTI's and antibiotics. We did constant potty checks from morning to night, limited liquids in the evenings, always followed a healthy diet of fiber, fruit & veg. This went on for years, yet the bedwetting, and later the day wetting, couldn't be ignored. Tired from not receiving help, at the age of 7 we took her to Philadelphia Children's Hospital. Got up at 4am for the brief 2 hour drive followed by a 3 hour wait, and after one ultrasound, without listening to us, they blamed her bedwetting on constipation though I explained she had not yet moved her bowels that day, and she did daily so that did not account for the problem. We were left with the task of a liquid intake/potty diary, though we had been keeping one for months on our own. After several follow up appointments over the following months and not getting anywhere (being thrown into bed-wetting category) we proceeded for another opinion at Penn State Hershey, where they immediately found the actual problem. One of her kidneys was deformed and abnormally small, the other normal sized, yet neither working at 50%. It was a relief and heartbreaking at the same time to watch the screen as the dye returned to her kidneys. I try not to think of how it could have been eradicated years before if she received the care we sought and she deserved. We were extremely hesitant but decided for the surgery and she's been monitored since.
The day accidents ended but the night bedwetting hasn't let up regardless of many methods. She's also been given medication to decrease the bedwetting and there has been no change. We avoid diapers at home, considering the tremendously wasteful impact they have on the environment, instead opting for plastic bedding in multiple layers placed underneath her regular sheets which are washed every morning. I don't blame her in the slightest but the odor is practically unbearable and vacations of any kind have been more than difficult. We have tried adult diapers for trips, even doubled pairs, but she soaks right through them. We were hoping to camp this summer, however due to my inability to handle the smell it doesn't seem a possibility. If anyone has any tips I'd love to hear them!!!