I recently found out my 15 month old daughter was dianosed with Noonans Syndrome. I want to know If there are other moms whose child has this. How early would you start speech and possibly sign langauge? She doest even say ma yet. Do they learn to talk? my daughter is developmently delayed,but seems very bright. any comments would really be welcome.
The people who responded gave really great advice. Thank you all so much for taking the time to answer. I still would like to hear from anyone else with their opinions. Thank you again. K. F.
I am so sorry about your daughters diagnosis, it is trying to have a child that will have challenges. I lost a child in pregancy that had a rare disease (not this one). I know that information is key at this time. Try this web site BDF new life for information. They have printable booklets for your information.
Good luck!
My heart goes out to you because I also have a special needs child. We don't have a diagnosis for her but we all think it's Angelman Syndrome. She doesn't talk or walk and even though she's almost 3 she is just like an 8 month old baby.
You should contact your local school district and they will have your daughter evaluated for services and can set you up with a speech, OT, PT or whatever else she may need. It's been wonderful for my daughter because they come right to the house each week and work with her here. She will be starting Special Ed. preschool after the holidays and even though it's scary it'll be good for her to get all the help she needs.
Best Wishes and please email if you have any other questions.
J.
I have never heard of this, sorry, but I would educate myself as much as I could if my child was dignosed! Go online or to the library, ask doctors questions, ect....
Maybe you can find a chat group or play group with other children/parents experincing this...
I hope you find answers to your questions, and stay strong!
The earlier the better. Definitely talk to your child's doctor and your County department of Human Services about a Birth to 3 program. They will get you set up with all the therapists you need.
Hi and I'm sorry to hear about your daughter's condition. I don't know anything about it either, but I found this support group for parents. I wish you the best of luck and a very Merry Christmas.
