18Q

There is a group called Mothers United for Moral Support (MUMS). They have chapters in almost every state. There is also a group NICHY. (I think that is it but cannot remember the entire accronym.) Try a search with the terms National Clearing House Genetic Disorders. That might get you to them. Both of these groups have information about families and MUMS can find you someone to hook up with to talk. It depends on how families are registered with them.

I'm sorry I haven't. Try asking the pediatrician or go online and find a support group. Good luck and keep us posted

M.,

I do not have any information about 18q, but I wanted to say God Bless you and good luck. I hope you have (and get) all the supportt you and your daughter need to live with her special needs.

{{Hugs}}

no, BUT I have a son who has 22q11 Deletion syndrome, LOL!

M.-

I supply keepsake awareness items to national non-profit health organizations throughout the U.S. My new account is
CDO or Chromosome Deletion Outreach. They can be a great assistance to you. There website is www.chromodisorder.org.

Good luck,
K.
K.'s Pearls of Hope

I don't have any advice (sorry) but I did a quick Google search and came up with these site, maybe that will help you.

Chromosome 18 Registry & Research Society
7155 Oakridge Drive
San Antonio, TX 78229
Tel: ###-###-####
Fax: ###-###-####
Email: ____@____.com
Internet: http://www.chromosome18.org

Chromosome Deletion Outreach, Inc.
P.O. Box 724
Boca Raton, FL 33429-0724
USA
Tel: ###-###-####
Fax: ###-###-####
Email: ____@____.com
Internet: http://www.chromodisorder.org

Best of luck,
B. A.