Offer support and share experiences for families dealing with muscular dystrophy. Discuss coping strategies, resources, and ways to help your child thrive. For medical advice, always consult a healthcare professional.
- by systemOffer support and share experiences for families dealing with muscular dystrophy. Discuss coping strategies, resources, and ways to help your child thrive. For medical advice, always consult a healthcare professional. 1 post – 1 participant Read full topic
- by cellmer214I have a friend who's 8 year old son has been diagnosed within the past 2 years I believe with Muscular Dystrophy. I don't know all the details but we were speaking yesterday and one of their biggest frustrations is not having anyone to connect with that is experiencing what they are. She is working […]
- by ferret.fanI'm not sure how to explain this. So please bare w/ me. Does anyone know anything about Charcot Marie Tooth (C.M.T. for short)?? It is a form of Muscular Dystrophy (M.D.). I've found a bunch of information on the internet. However, I'm not for sure what stuff is true and what isn't. Like for example: […]
- by Kim_U1Just wondering if there are any other families in the area who have sons with Duchennes Muscular Dystrophy. 2 posts – 1 participant Read full topic
- by aspenmarksGosh what a pleasent surprise to see a specific topic. Well, I have a special boy whom was diagnoses with DMD last spring and we're getting over the shock. My son has had dry pull-ups in the morning for quite awhile and I thought oh great we can move on. But recently he has regressed […]
- by lisaordes76Ok here is my problem. My youngest daughter has muscular dystrophy and has had several ear infections. We have seen an ENT lately and also her pediatrician. While we were going to the ENT I asked if they could please communicate with the peds office so that they would know what is going on with […]
- by gapeach725My son is 5 and has muscular dystrophy. He needs PT/OT and since my husband and I both work full time, I'm trying to find a facility that stays open late. Any help would be appreciated. We live in Woodstock, but any surrounding area is fine. 2 posts – 1 participant Read full topic
- by rysdamsI'm having a hard time figuring out what to get for my van to get my daughter in and out in her wheelchair. I can't believe that insurance doesn't pay for these things. Anyone find any good deals or cheaper ways to get them? We are in MN. Thanks for you help. P.S. We don't […]