Connect with other families navigating life with cystic fibrosis—share support, coping strategies, and experiences. For treatment and diagnostic questions, always consult a healthcare professional.
- by systemConnect with other families navigating life with cystic fibrosis—share support, coping strategies, and experiences. For treatment and diagnostic questions, always consult a healthcare professional. 1 post – 1 participant Read full topic
- by mwheeler09I am 12 weeks pregnant and I just found out I am a carrier of Cystic Fibrosis and that if my husband is also a carrier that our baby has a 50% chance of having it. I am beside my self. I don't know how to respond to this. I have already been through so […]
- by Michelle_D7I am growing it ….juicing it …..it is not very good but I have been told it is very good for you. Anyone else here doing this? 6 posts – 1 participant Read full topic
- by frenchfarmloriMy daughter is 15 months old and we've been seeing a GI DR b/c she has a 'failure to thrive'. We are going for an endoscopy and biopsy soon, in addition they will be taking 'gastric fluid' to test for CF. I wanted to know from some one who knows about having either… what is […]
- by greeneyesouthernbelleMy son was diagnosed last November, and I have yet to talk with any other moms who are dealing with CF. I would really appreciate some input. Thanks! 13 posts – 1 participant Read full topic
- by anseveyI have CF (diagnosed at birth), and am wondering if there are any other moms out there who have it. It would be neat to share pregnancy and parenting experiences, and just chat a little! Adrienne 1 post – 1 participant Read full topic
- by jtanskiI am looking to share every and all things realted to CF in children including medical care, issues with schools and cleanliness, best ways to administer inhaled meds and medical procedures as well as new studies and therapies. Jenny 1 post – 1 participant Read full topic
- by noelle_3My husband and I are both confirmed carriers of the CF gene. We found this out during my pregnancy with my son. I saw this was a catergory here and I thought I would see if there are any others in this situation. It makes it a little difficult to think of having another child […]
- by GrandmaValI was wondering if there is a Special Needs Support Group in Morris County Texas? My granddaughter has CF and I would like to be able to get together with other caregivers of special needs kids. Thanks, GrandmaVal 1 post – 1 participant Read full topic
- by pampermesilly1973CF stands for Cystic Fibrosis. Cystic fibrosis (CF) is a life-threatening disease that causes mucus to build up and clog some of the organs in the body, particularly in the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck […]
- by pampermesilly1973I am looking to talk with other moms of cf kids. I really don't have anyone else to talk to except family and friends. 6 posts – 1 participant Read full topic
- by blayznrose28i was just wondering if there were any other moms who are dealing with there children who have "cystic fibrosis" 5 posts – 1 participant Read full topic
- by droseqMy 3 week old daughter just had a test come back that states she may have cystic fibrosis or be a carrier. I am terrified. can anyone relate ? 13 posts – 1 participant Read full topic
- by kathielandSome of you may have already seen or read the recall on the CF discussion boards and chat rooms but for the rest of the CF community, please check if you are in possession of the wet wipes described below. Rockline Industries is recalling wet wipes sold under various names at Wal-Mart and Sam's Club […]
- by tiggergurl718I was just wondering if anybody had any advice or tips that I need to know about raising a child with cystic fibrosis. Any information would be helpful. My daughter is 7 months old right now, but I'm worried about putting her in day care and how serious I need to be about who comes […]