Vomiting My Girl Daily 3-4 Times

Added after B's response:

T., you need to get someone to translate for you what she has written. It's very difficult English and it's medical-speak, which makes it even harder to understand.

Original:
If you are in the US, you need to get her to a Children's Hospital. You don't say if she has been getting speech therapy. She needs it. She needed it two years ago when she got the cochlear implant.

I don't know what a torch infection of the brain is.

Please find a Children's Hospital for her.

Ok, have you had anyone explain to you what a TORCH infection is?
She caught something before she was born or while she was born that has damaged her brain.

Here is what I found:

"TORCH infections are a group of congenitally acquired infections that cause significant morbidity and mortality in neonates. These infections are acquired by the mother and passed either transplacentally or during the birth process. While each infection is distinct, there are many similarities in how these infections present. It is important to consider TORCH infections whenever a neonate presents with intrauterine growth restriction (IUGR), microcephaly, intracranial calcifications, conjunctivitis, hearing loss, rash, hepatosplenomegaly, or thrombocytopenia.

Although the five classic infections are discussed here, the “other” category now also includes HIV, VZV, parvovirus B19, enteroviruses, and others.".

She's going to be a special needs child/person her whole life.
This is a really complicated condition that your child has and there's no way strangers on a web site can give you any meaningful medical advice.
Please keep working with your doctors and it might be helpful if you can find a support group.

It sounds like there is a congenital infection (torch), profound hearing loss with resultant speech delays, vomiting (which would imply you need a gastroenterologist) but a diagnosis of epilepsy (so you need a neurologist). So I agree with Doris Day that you need to get to a children's hospital and get a team of specialists to evaluate her together - hearing/speech, development (other milestones), a digestive specialist, a neurology specialist, and perhaps a pediatric pharmacologist to evaluate all her medications (current and suggested). You should also have a social worker assigned to help you coordinate everything and deal with your own stress and the social issues involved with a child with multiple delays. If English is not your first language, ask the hospital social worker or team leader to supply a translator for you to help with all the information and particularly the "medical speak" you're going to hear. Take someone with you (a friend, a sister, anyone not directly involved) who can help to take notes for you so you have a record when you get home. Good luck.

this stuff is FAR too serious to be dealt with on the internet. if this is a real post, your next stop must be at a good children's hospital to have actual experts start taking care of your child right now.
khairete
S.

It really sounds like you have done all the right things. I would just get a second doctors' opinion if you aren't satisfied. It never hurts to be sure. If you don't have her in therapy for hearing disabled children, perhaps that would help with the issue of speaking/communicating.

Hve you taken her to a children's hospital for a complete evaluation?
Not sure how far you are from University of Kentucky children's hospital - but you really should have a complete evaluation done. This is not something that should be diagnosed and treated by a regular pediatrician. While it's tough to find the financial resources to get travel to and spend time and pay for the medical tests and services, think about what's more valuable - your child's health, a vacation, a new car, etc. When our child was very sick a few years ago and we were struggling with the cost for things that weren't covered we conluded that since we'd take out a loan for a car or we'd put a vacation on a credit card - our child was of far greater value and we'd go into debt to get her the right medical care if needed. Hopefully you have insurance so go get her the right diagnosis and treatment.

http://www.google.com/url?url=http://ukhealthcare.uky.edu...

Ditto on the children's hospital recommendation. She needs a complete work-up and then you can go from there. So sorry, I know if must be scary but go to the experts.

you need to see a pediatric gastroenterologist about the vomiting... .

Take her to a gastroenterologist and ask about "sphincter of Oddi dysfunction." A doctor needs to get to the bottom of this -- your daughter should not be vomiting all the time.

I watched a medical mysteries show one time where the person was vomiting frequently, and it turned out that she had sphincter of Oddi dysfunction.

Good luck with your little girl. I'm sorry she's going through this.

Maybe she has GERD, it is very painful for the child. I agree, get to a pediatric gastro pronto! She needs help!
Good luck.

I truly thing you need to take her to see a specialist that deals with Epilepsy and other illnesses similar to that. The meds are not working well it seems.