First thing I'd like to say is that I am sorry to hear that you are having to go through all of this, and basically by yourself, at that.
I think that the best thing for you to do at this point is to sit down with your husband one evening when your child is asleep, and very calmly tell him that you are afraid, that you have been feeling that he doesn't care, that you wish he would go with you to the neurosurgeon appointment, etc.
Believe it or not, some men actually have to be told these things. Often times, they do not think about it on their own. They see us women doing a lot of work around the house, taking care of the children, giving birth, working outside the home, etc, and apparently feel that we can handle anything that comes our way.
Do not beat around the bush. Tell him directly what you expect and want from him, and it may have an affect. Don't bring an outside person into this discussion, just you and him, and tell him outright what your fears are, and that you think he doesn't seem to care, or is making light of your condition.
Also, make sure he knows that this is a very serious health condition, and if you need a rest, then you are going to rest. He needs to step up to the plate and take care of your child and let you rest when you need it. Yes, you signed up to be a mother, but not a SINGLE mother, so he should help when you need him to, without being asked.
Make sure you write down a list of all of your health concerns, and take it with you to all of your doctor's appointments. Often, we are so nervous about going to see the doctor, that we forget to mention really relevant things which could help the doctor in his or her diagnosis and treatment.
I don't know if you a religious person, but the power of prayer really can help. If you belong to a church, ask them to pray for you. Perhaps you have a group of female friends who could form a prayer circle for you. Whether it's God or just faith in the healing abilities of the human body, prayer can do wonders.
Lastly, please take good care of yourself. I know you are busy taking care of your child and husband and household, but if you don't take as good, or better, care of yourself first, then how will you do everything else?