This Is NOT Normal! What Is Wrong with My Baby?

Updated on November 21, 2011
L.L. asks from Austin, MN
19 answers

So, I have an 18 month old daughter. She has Celiac disease, but has responded very well to a gluten free diet and has been happy and healthy for awhile...

....except for the last couple of months, she has chronic constipation. It's so bad she's had several fissures, has TERRIBLE pain around her anus, etc...it's awful.

She isn't responding to Mirilax or Colace, both of which she's been taking for a few months on a regular basis.

Her ped. wants me to try four more weeks of this treatment, but my gosh, I don't know if I can put her through this much longer. What could be causing this?

(BTW, she's still breastfed, drinks a LOT of water, and I do mean a lot, drinks NO dairy milk, eats lots of fruits and veggies, and at least two large prunes a day. She has plenty of fiber in her diet, and plenty of liquid.)

***Added*** She's the most active child I have ever met. :)

*** I did mention she has Celiac disease. Because I am breastfeeding her, I am obviously on a gluten free diet...and very strict about it.

What can I do next?

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M.B.

answers from Dayton on

I'd do the Pediatric GI dr too, but you could try an enema to help clear her out. When my son was one, they told me to give half of the pediatric fleets enema. They also have liquid glycerin suppositories that have worked well for us.

2 moms found this helpful

J.S.

answers from Hartford on

Are you avoiding giving her other binding foods for a while until her digestive system can relearn how to digest foods without issues? Like avoiding rice, peas, bananas, cooked carrots, cooked potatoes, baked chicken, cooked peaches, cooked apples (applesauce), etc.

If she drinks juice, I would back off on juices since they're a lot like soda and the sugar can backfire and cause either diarrhea when they're sick or promote constipation when they're already constipated. I would stick with giving her plenty of water. Water is one of the best things anyone can have to combat constipation which is often caused by dehydration.

1 mom found this helpful

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S.H.

answers from Honolulu on

I would go to a Pediatric Gastroenterologist.
Have your Ped, refer you to one.

3 moms found this helpful
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M.C.

answers from Cincinnati on

My son had issues with constipation but not this severe (no fissures etc.) when he was a younger age (around 9 months). I kept hearing how breastfed babies never have this issue and could not figure out why we were. Lots of fruits and veggies are good of course, but some of them are rather binding. What finally got my son on a normal pattern/eliminated constipation was a daily probiotic (we used one that is gentle for kids - culturelle) and a daily yogurt. My son at 3 1/2 can not tolerate cow's milk but has never had an issue with yogurt. In addition, we had to eliminate the binding fruits and veggies for a few days until he got back to normal (winter squash, apples etc). Good luck. I hope you are able to treat her sooner than later. Poor baby.

2 moms found this helpful
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N.J.

answers from Los Angeles on

I've read anecdotal evidence to probiotics helping with constipation--maybe there's a dairy free version your ped. can recommend in addition to requesting a referral to a Ped. GI specialist. Hope you find a answer shortly, can't imagine what your lil' one is going through...

2 moms found this helpful
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R.H.

answers from Boston on

Are you soaking her bum in the tub (warm water, just an inch or two deep) SEVERAL TIMES a day (for a few days)? Often this is the only way to relieve the pain of a fissure, and encourage it to heal. People will do whatever it takes to avoid BM's when a fissure is present. They are extremely painful.

2 moms found this helpful
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B.C.

answers from Joplin on

My very best advice ( having been there with my daughter) is to ask them to prescribe a simple sugar for your daughter called lactulose.
This was a life saver for us, as our daughter had several painful fissures as well.

Good luck.

1 mom found this helpful

G.T.

answers from Redding on

Is she getting enough physical exercise? Cardio is very important for our digestive system. I know when I sit around too much I dont have the urge to go and it just makes it sit longer in the colon which hardens and dries it.
Get some magnesium tablets and crush them and put them in some juice... it really works to soften the stool and gives you the urge to go.
She's only 1.5, but should have some vigorous play during the day... like if you chase her and she gets all excited running from you, they need that adrenaline rush to get things moving, we all do. Look for foods that are high in magnesium (http://www.algaecal.com/magnesium/magnesium-rich-foods.html), it will keep her stools soft so the fissures can heal. She may need some prescription strength suppositories to take down the inflammation and heal her anus.

1 mom found this helpful
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M.H.

answers from Atlanta on

I had Ulcerative Colitis growing up and have learned a lot through my journey. I'm completely healed now but doctor's don't have the vested interest that you as a mother has. They go the standard route first and then, sometimes get no further.

I would suggest two things. First get her to a good principled chiropractor. Interview them as you would any doctor and ask them to explain how chiropractic will build her immune system and keep her healthy throughout her life. If they don't understand the immune system you are definitely in the wrong place. Next I would try Slippery Elm bark. It is perfectly safe for infants and heals the internal tissue in the digestive tract from the esophagus to the anus. It also balances the bowel movements. It isnt laxative or constipating but gets the digestive system to balance where it is healthy. I have used it for myself, my kids when in distress and keep my 94 year old Dad on it daily. He's bedridden and on a feeding tube so regularity and a healthy system is incredibly important.

Other than the miralax and colace, I think you are doing a lot that is correct. The jury is still out if miralax is safe over seven days of use. I hope this helps! I'm hate to see a little one uncomfortable!

God bless,
M.

PS Make sure you are taking an absorbable multi so she can get the best benefit of your milk. Most don't absorb so do your research. I can recommend one if you like.

1 mom found this helpful

M.L.

answers from Houston on

"Chronic constipation, often requires long-term therapy with oral medication. Most children respond to therapy and are able to discontinue medications within a year. Relapses can be common, especially if the child or parents do not follow the health care practitioner's instructions, or medical intervention is not present. If therapy fails, the child may need to see a pediatric gastroenterologist, the doctor who specializes in the stomach and intestines."

From here, lots of great advice. After several months of this, I would be seeking another opinion than that of your pediatrician.

http://www.emedicinehealth.com/constipation_in_children/p...

There are also things you can do to relive pain and stimulate bowel movements, such as here:
http://www.emedicinehealth.com/constipation_in_children/p...

1 mom found this helpful
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T.W.

answers from Syracuse on

I would get a referral to a Pediatric Gastroenterologist. I would just call tomorrow and get it.

1 mom found this helpful

M..

answers from Detroit on

I am sorry she is going through this. :( I dont know much about Celiac, but have been on several medications and hospitalized due to "intestine blockage" which is medical term for I was about to die If I didnt get this poop out of me. But anyways, Milk of Mag has never let me down as far as clearing me out.
It might be worth a try. Good luck, hope she feels better!

1 mom found this helpful
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M.S.

answers from Portland on

My daughter didn't have Celiac Disease, but she did have constipation for the first 6 months, I actually had to help pull it out. (Sorry, too much TMI I'm sure.) We finally put her on Similac Alimentum after trying soy, pear juice, apple juice, rice, prunes, etc. She is now 2 and has no problems on a regular basis. My son is now 6 months and is on the Alimentum also and he always goes a gooey mess, but at least he's not in pain. I would give it a try. I know BM is supposed to be best, but sometimes we have to use formula for our little ones. If she doesn't like it, or it doesn't work you'll know in a few days.
Good luck!!!

1 mom found this helpful
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L.M.

answers from Houston on

Wheat allergy?
ETA: Nevermind, you said Celiac...duh ;)
Sorry...

1 mom found this helpful
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T.C.

answers from Johnson City on

not read the other responses, but we have always kept dark karo around, its an old remedy passed thru the family and it works wonders

1 mom found this helpful
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S.L.

answers from San Francisco on

Hi there,

My good friend's son had something similar I think...I will send her a Facebook message and PM you anything I find out...hang in there, S.

1 mom found this helpful
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A.F.

answers from Fargo on

I have NO idea if this is anything to consider...... but is there such a thing as too much fiber?

I would ask your ped for a referral. I think four more weeks of a treatment that you know isn't working is FAR too long for a toddler. Trust your instincts!

I would take her to a Chiropractor. I have to tell you this, when my niece was about 2, she started having problems with severe constipation. She even went so far as to see a specialist at the hospital at University of Minnesota and nothing they did helped her. In the meantime, her mom and my family had to watch her go through all of this and not be able to help her at all. My heart goes out to you, because I understand that you want to be able to relieve her pain so badly!!!!!
My sister took my niece to a chiropractor and they adjusted her and put her on a gentle formula to help her poop and get her back into a natural rhythym for being regular. IT WORKED!!!!!

HUGS. I know this is hard. I'll say a prayer for your little one.

1 mom found this helpful
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☆.A.

answers from Pittsburgh on

Have you considered another doc, a second opinion maybe? maybe a pediatric Gastro doc?

1 mom found this helpful
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J.K.

answers from Phoenix on

Could she be reacting to the dairy and gluten in your breast milk? All 5 of my children reacted severely when I ate dairy and one of mine reacted when I ate gluten. Try eliminating those from your diet as well. Good luck to you!

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