Special Needs. Angelman Syndrome

I have a 13 yr old daughter with Turner Syndrome that was recently diagnosed with type 1 diabetes.

I know very little about Angelman Syndrome. Is there a support group locally?

Hi my name is D. I have a thirteen year old son with an unknown diagnosis, he is a quadraplegic on a ventiolator 24 hours a day. I have never heard of Angelman Syndrome, I would like to learn about it if you have time to respond. My son requires 24 hour care, usually we have nursing, but I just spent all night awake because we did not have a nurse last night. If you have any questions about anything please don't hesitate to let me know, I will do the same if that is O.k. Sincerely, D.

My name is N. and I have a daughter that was born in early December. While I was pregnant they found out that she had an enlarged ventricle in her brain. During the pregnancy we hoped that is all we would deal with but unfortunately since she was born we have been dealing with seizure activity on a daily bases. They have diagnosed her with a genetic disorder called Aicardi Syndrome. With this being so recent we have not joined any support groups at this time but I would love to. I am just trying to grip all the information that is being thrown at us.

I have a son with special needs who has not been categorized with one thing thus far. He is 7 going on 8 and has developed the skills and speech of a 5 year old. Doctors and specialists have said he may have CAPD (Central Auditory Processing Disorder) or Autism in a mild form. This year he is in first grade with specialty classes like Math, Ocupational Therapy, Physical Therapy, and speech and language. This is the first year I have seen any real changes in his development.

I am an occupational therapist who owns a gymnastics facility. We have classes for kids with special needs and we have a little girl with Angelman. I have also treated 2 other children with Angelman. I will talk to the parent of the girl we have at gymnastics and see if she would like to exchange emails. I know she is also working on getting a support group going in the Omaha area. Email me if you have other questions.

Hi, we have 3 kids, one with special needs. We are also a treatment foster home for medically needy kids. Our special needs kid was tested for Angelman's (and all kinds of other genetic syndromes) but doesn't have it. Are you looking for local support, or do you have specific questions?

I had a daughter that had a lot of the same symptoms. Her basic problems came because my placenta didn't form properly. I don't believe she had this syndrome, but many of her problems were the same. She died from complications of phenonia in August. She was 33. We had her at home all of her life.

Hi karla. My name is deb i have a 9/12 year old son with angelman syndrome. My first cousin also has a daughter with it. Is there anything i can help you with or are you just looking for someone who understands. I am from illinois. I'm more than happy to lend a hand or an ear.....:)