Hi J.,
I have been doing medical research for 11 years.
The fact that you have a baby who already has kidney issues means that there is probably some kind of HPA axis (Hippo/ pituitary/ adrenal)malfunction. Bladder and Kidney problems are typically seen in people with adrenal disease.
The adrenal gland controls the hormones: cortisol , aldosterone, and many more (upwards of 30-50 hormones). These hormones regulate major organs like the heart, lung, KIDNEY, central nervous system, liver, etc..
You should have her checked for a growth hormone deficiency- common in children with small head and kidney disease together.
Chromosome 20 ring has symptoms of small head and kidney disease together, as do some other chromosome issues. I would ask for a referral to an endocrinologist and start with the growth hormone check.
It is not normal to have Kidney malfunction at any age. So you are already starting off with some medical issues here. In refrence to some other posts on here who are telling you not to worry about it because your pediatrician isnt worried- that is not good advice. Most general practice doctors don't have a lick of training in endocrinology and will NOT see typical warning signs of endocrine disease, even blaring ones.
In regards to that- I look at how many parents have had children who should have been categorized in "failure to thrive" mode and been sent to an endocrinologist for workup, but the moms are on here basically telling others that their grossly underweight children "got a pass" from their general MD. I am not putting down the parent, who should be able to trust a doctor, but showing an example of how doctors aren't recognizing these symptoms for what they are. Adrenal disease is at epidemic proportions. In fact, when you see these diseases, you can bet adrenal disease is the root cause:
hypoglycemia
diabetes
kidney stones/kidney disease
bladder urinary problems
heart failure and other issues
low blood pressure
high blood pressure
central obesity (high hormone output)
severe underweight/fail to thrive/doesnt like to eat (low hormone output)
vasovagal syncope/dizzy/fainting
RSD/CPS
Some arthritis, MS and RA
asthma, COPD, Sudden infant death syndrome,
Reynauds syndrome
Sarcoidosis
and so many more...
It is best if parents get involved by doing medical research. We have to become our family's medical advocate. We cannot trust that everything our doctors say is absolute. Indeed it is not. The endocrine system supports LIFE, and without the right AMOUNT of these certain hormones , problems will continue to arise over the course of years. Slow usually at first, but as the person progresses, worse and worse symptoms appear as the gland shrinks or puts out less and less hormone. A child can go through childhood with aches and pains and some blood sugar deregulation and not be that "unwell", but when puberty hits, it puts a HUGE burden on the gland to suddenly pump out more hormones, and the gland simply cant keep up. Addisons disease symptoms many times become prominent at puberty. (often misdiagnosed as LYME disease, Chronic fatigue syndrome, Fibromyalgia, and other illnesses. )
Please ask for a referral to an endocrinologist. Lookup these items on wikipedia and become more familiar with them:
Cortisol
Aldosterone
Adrenaline
Growth hormone
HPA axis
Addisons disease
hypoaldosteronism
Cushings disease
conns disease
Gail