Hi D.,
My name is T. and I am 31 years old. I have Cystic Fibrosis myself. I live near Sacramento, CA. I have to tell you one of the best experiences growing up with CF was CF camp. I went to the Northern California CF camp sponsored by CFRI. I started going when I was 8 years old. It has changed dramatically over the years, due to cross infection, but the friends I made are so helpful and supportive.I rarely make it to "camp" anymore, it's now called CF Adult Retreat but many of my camp friends keep in touch through email and message boards. I can point you toward a message board where many of us keep in touch to this day! Please email me. I have lots of experience with CF and many many friends in the same situation. We are all willing to help with any questions you might have. My private email is T. (at) droflet (dot) net. I'm not sure if this message board will let me post the email as it's supposed to be written, so that's why I wrote it that way. I hope it makes sense! Hope to hear from you. Hang in there.