Seeking Mom's Who Have or Have Heard of Raynauds Syndrome

Updated on November 05, 2006
A.W. asks from Sunbury, OH
5 answers

A friend of mine is 14 weeks pregnant with her first child, she also suffers from Raynauds syndrome which is a circulation problem. My question is has anyone with this same problem had any trouble nursing? Since it is a circulation problem she is concerned that it might affect her. She has asked her OBGYN and they really had no response.

Thanks for your help.

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J.D.

answers from Dayton on

OBGYNs spend little to no time during their training on breastfeeding, so it is no surprise that they wouldn't know anything about it. I do not have any knowledge on the disease, but with good support from the right people, almost every mom can breastfeed, no matter what her situation. I recommend that you seek out the opinions and recommendations of several certified lactation specialists. You can look them up on the internet. They have the certification letters of IBCLC after their names (and you can use that to look them up). In addition, you could try the La Leche League website. LLL is an international breastfeeding support group for mothers and they have some fantastic information available on their website. Best wishes!

1 mom found this helpful
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M.L.

answers from Cincinnati on

A.,
I have Raynaud's syndrome. I developed it after the birth of my second child. Your friend should not worry about it affecting her breastfeeding, it shouldn't. Raynauds only affects the outer extremities. I view it as more of an annoyance than anything. But very important things your friend must start doing is wearing long sleeves and keeping her hands and feet warm. Something that took me some getting used to was the way my fingers would turn white and look like they are dead. When they start warming up, they start turning purple then red. It has become sort of a game for my children to warm up my hands and feet.

I know that this is a very scary thing because it is so odd looking and hurts a little. Please feel free to have your friend or you to contact me at my home address ____@____.com

M.

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T.K.

answers from Columbus on

The Elizabeth Blackwell Center in Columbus Ohio has great Lactation Consultants who can talk to her prenatally or after the baby is born.
I have seen it go both ways; some moms have no problems and some have some. Just make sure she knows what the problems could be and how to handle it. I would suggest she talk to a Lactation Consultant about it!

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S.

answers from Cincinnati on

Hi A.,
Your friend should be thankful to have someone concerned for her. I can't address your questions directly, but can tell you that I have read numberous testimonials regarding Raynauds and people who have had a lot of improvement without the use of drugs. If you think she'd be interested, pass along my email: ____@____.com

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