C.,
First of all, I am sorry to hear about your Mom. What you are going through is very hard. I know this because it just happened to me.
My Step-Father had Lou Gherig's disease---it is a deadly disease that eats away all of your body functions. Whoever has it, usually dies within a year. My Step-Dad got diagnosed in April of last year....he was walking with a cane then. My wedding was at the end of June....he was in a wheelchair but could walk a little sometimes(at my wedding was the last time he ever stood up and walked a few steps). By August of 2006, he was always in a wheelchair and could only move his upper body. This year he got a feeding tube, oxygen and finally a respirator. He was taken off the respirator June 22, 2007.
Through this whole ordeal was my son. He is almost 5 now. I was honest with him from the get-go. I told him grandpa was sick and at some point would go to heaven. He had alot of questions like kids do. I was always as honest as I could be. Even now he says that grandpa is in heaven with God.
My advice to you is to do the same thing. Keep things as normal as possible....make sure you are honest with your daughter--she will love you for it later.
My prayers are with you....if you need me, please let me know.
S.
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