On your darling granddaughter I have little or no info for you, just hope, NICU's have the highest demands for excellence of ANY unit in the hospital. Only the best of the best work there.
On YOU & Your son & his wife...I can tell you from working in hospitals...that the most infrequently used resource that you SHOULD take advantage of are their social workers.
They can not only provide couseling, the can also translate medical-ese into English, arrange for time off of work, insurance benefits (even to getting rooms in-hospital or across the street @ a hotel or Ronald McDonald for the parents), and gosh, about a hundred other things. A good social worker or case manager is something that EVERYONE should have.
((Just an FYI...I'd always associated social workers with CPS before I started going to school in the health sciences. Come to find, that's only one tiny little Branch of Social Work which ranges from case management, to counseling, to my goodness...too many specialities to list. My own best friend is a social worker through a cancer center whose focus is death & dying. Social Workers tend to have the letters MSW lic following their name. One HAS to have a master's degree and over 2 years of monitored practice (like Dr.'s doing their internship... practicing... but not fully licensed yet). The lic ...licenced independent clinician...comes after several years. Some social workers have their Phd, but since it usually takes 8-10 years just to become licensed (and therefore be able to bill insurance/aka get paid) many stop at their masters. mY POINT, that's I'm lumbering around to making...is that Hospitals employ highly trained and educated social workers for situations just like yours. Take every bit of advantage of them as you can.))
Best of luck, to all of you