I have two children, both young adults. My son graduated with a near perfect GPA from a highly technical college and is employed in a specialized technical field, lives on his own in another state, and has zero medical problems, and is happy and has a million friends.
My daughter has (are you ready?) Lupus, Ehlers Danlos Syndrome, Sinus Tachycardia, Delayed Sleep Phase Syndrome, Central Sensitization Syndrome, Severe Eczema, Generalized Anxiety Disorder, Dysthymic Depressive Disorder, Cognitive Sluggishness, Aquagenic Pruritis and Aquadynia (allergies to water), a history of Shingles, a history of three forms of Lyme disease, Fibromyalgia, Chronic Fatigue Syndrome, food and medication allergies, 3 forms of Migraines (ocular, regular and vertiginous or vestibular) and um...I think those are most of them. She has maybe three friends, but none within 3,000 miles of where we live.
It's a challenge. It took my daughter 7 years to graduate from high school, and her GPA was about a 1.1.
It's hard when you hear of friends' kids getting scholarships, getting married, studying abroad, taking fascinating advanced classes, and you know your day consists of trying to survive till bedtime without a trip to the ER or an insurance battle. Will she be dizzy today, or crying from the itching and the pain and the loneliness?
I have friends who are supportive - none near me, but my dh is supportive. He bought my ds a plane ticket to visit us for Mother's Day, and gave me the chance to just go have dinner with my ds and relax.
But this is the route we're on, and I spend my days researching, trying to find help, and trying to be an encouragement to our daughter. The thing that is hardest for me is that she has no friends, and is too tired to do anything during the day except sleep. The sunlight is difficult for her. I try to take her to late afternoon movies sometimes, and I never imagined myself as a 50+ woman seeing all the Iron Man and Captain America and Avengers movies (she loves that stuff, I don't). But I can name all the Marvel superheroes. Not what I envisioned but I try to just take it one step at a time.
You are most definitely not alone.