High Risk Pregnancy After a Loss

Updated on January 18, 2011
A.S. asks from Guston, KY
6 answers

I just found out that I am pregnant!! But have some questions. We have a 3year old little girl and lost a baby back in June and it was very hard for both me and my husband. After I lost the baby we found out that I have a blood clotting disorder that is likely the cause. But because of this I am now considered high risk for this pregnancy and have already started giving myself daily injections of blood thinner even before we knew i was pregnant. I am excited about a new baby, but at the same time very scared. How did you moms get thru a pregnancy after a loss? has any one else been thru high risk pregnancy with a blood clotting disorder? what should i expect? any advice and tips are greatly appreciated. Thanks!

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E.S.

answers from Asheville on

I haven't suffered a loss and I am so sorry for yours. I did have a high risk pregnancy including two clotting disorders. (also diabetes, hypothyroidism, high blood pressure) I don't remember what one of them was called (PCS, PBC, something like that) I take a baby asperin daily for it. The other is called MTHFR ( Methylenetetrahydrofolate reductase).

Methylenetetrahydrofolate reductase (MTHFR) is the name of a gene that produces an enzyme, also called methylenetetrahydrofolate reductase. If a person carries the genetic mutation that inhibits production of this enzyme, it can result in hyperhomocytenemia, which is an elevated level of an enzyme called homocysteine found in blood plasma.

When the body is deficient in methylenetetrahydrofolate reductase, its ability to absorb folate (also known as vitamin B9), such as folic acid, is inhibited. Folic acid and B9 are both essential to the development and health of the fetus.

Anyway, they found these things because I saw a fertility specialist before I became preggo because I have PCOS and my ob/gyn thought we may need help getting pregnant. She asked about family history of children and births and because my sister had problems with blood getting through the unbilical cord to the babies they tested me for things that could cause that.

I took Heparin shots twice a day for the first month and a half to two months. I had to psych myself up for every one and it always left a big bruise. I used my left side of my stomach for heparin and the right side for the insulin (It was 4x a day, but MUCH smaller needle!)
I was given a super neat pill called Metanx to take for the MTHFR. It has something in it to make your body absorb B vits and 16,000 units of B vits. I no longer feel like I'm 80! I wish it had been found earlier so I could have enjoyed my 20's and 30's more, but I have it now and WOW! My insurance changed and it is no longer covered on the new prescription plan because it is considered a 'medical food', but it's about $32 a month.
I hope this has been some help and feel free to PM me if there is anything else about these problems that I may know about. I could send links to some sites, but I'm sure you Googled your conditions too!
Good Luck! (Oh, by the way, we had two beautiful, healthy girls, born 6wks early- I got pre eclampsia. They are 2 1/2 now and the pediatrition still has a hard time believing they were so early!)
May your pregnancy go well and may your baby be healthy! Sending love and good wishes!
Beth

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D.G.

answers from Houston on

Hi I don't have a blood clotting disorder myself - though I did have two high risk pregnancies- but there are lots of ladies on the preeclampsia website that do, and have experienced healthy pregnancies after a loss while on blood thinners.

www.preeclampsia.org

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S.D.

answers from Tampa on

I too have clotting disorders found after 2 early miscarraiges. I have a 3yr old son and am now 32wks pregnant with our second little boy. I was taking baby aspirin only until I found out I was pregnant, then added the lovenox injections daily as well. I started going weekly to the OB at 28wks for ultrasound (biophysical profile weekly, growth monthly), non-stress tests, and OB appt. I have heard that you should be taking extra folic acid as well due to the lovenox. I was already on extra because I take seizure meds as well. This has been a very emotionally stressful pregnancy, esp since I had a seizure at 29wks, but I am doing my best to just leave it in Gods hands and pray that this little guy makes it through with no major issues (and me too of course). I wish you the best of luck and if you want to chat more, just send me a msg!

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L.C.

answers from Jackson on

My daughter found out that she had a clotting disorder last year after a stillbirth at 8 months. She got pregnant almost immediately after her 6 week checkup during which they told her that she had the clotting disorder. She took 1 and 2 shots a day until he was born at 32 weeks, 5 days and after until her 6 week checkup. The prematurity of the new baby may not have been related. She was considered her a high risk too. Frequent appts and ultrasounds.were the order of her pregnancy. Everything came out ok. Beware during the 2nd half of the pregnancy you will run out of places to stick the needle because of having shots 2xs a day. LOL

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C.A.

answers from San Francisco on

Having a miscarriage, changes how you feel about being pregnant. After I had my miscarriage, I became pregnant about six months later. I live in a town near a major city where I knew I would be delivering and my OBGYN worked. I had a friend who became pregnant around the same time. She had the same insurance. She thought that it was silly that I didn't use the clinic in our town but drove into the city for care. I wanted to be right next to the Non Stress test unit, the O.R. and every other resource my insurance could offer.

So, expect that people who have not had a high risk pregnancy won't get it. If your gut tells you to go to the doctor, do. Don't let people down play your situation. As much as you need to stay calm and mentally healthy during this pregnancy, you need to make sure that you are educated and informed and an advocate for yourself.

During that pregnancy, the doctor said (during my 33 week visit) that everything was going so well that I didn't need to see him until week 37. I didn't feel comfortable with this idea but I trusted him so I allowed the appointment to be made that much in the future. At that appointment, the doctor discovered I had the HELLP syndrome which is a severe form of preelamsia. I delivered that day by emergency c-section.

I wished that I had been brave enough to tell him that I wanted an appointment weekly at the end of that pregnancy. The baby, who is now seven and I are fine but it was very real that we both could have died. When I became pregnant again, a year ago, I had my doctor's full attention the whole pregnancy. I had a non emergency c-section and that is definitely the way to go!

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J.L.

answers from Minneapolis on

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