Hi C.
My heart used to stop too when it when off constantly too!!!!
My daughter was born at 23 weeks and spent 101 days in the NICU and we planned to take her home and the night before
we stayed over night at the hosptital with her and YES we had that very same episode she turned "blue". I freaked and ran and got the nurses. I had no idea what kind of experience we were in for when taking her home.
She was also sent home on the apnea montitor,oxygen and a PULSOX machine and since I was nervous to begin with and NOT A NURSE. The first week was hard that thing went off all the time.
My advice is whoever is supplying you wtih the equipment make sure the give you plenty of leads(the sticky pads that attach to your child) they fall off and the machine goes off. When your child moves and pulls the wires it goes off. If she is taking oxygen make sure the tubes are clear and change frequently they would get clogged ALOT and unfortunatly for us my daughter probably wasnt getting half the oxygen she needed because the tubes were clogged alot and we didnt know it!
I would say use your best judgement. I kept her on the apnea monitor for 2 months straight and after that the constant ringing I couldnt take it anymore. I took her off and just tested her oxygen myself and looked at her face to see if she was blue or I looked at her chest to see if she was tugging in to mean she wasnt getting enough oxygen. In speaking with others about the alarm going off its a common accurance in that because its so sensative to all of this things that it goes off all the time. Whe you take the leads off to change it goes off. I would shut it off first to change the leads and during the day if you feel comfortable because you are there and in the room after the first month trying taking her off. Its best to keep it on at night so that when your both sleeping and she is sleeping her breathing is shallow at times so the monitor will pick that up and if you need assistance AT ALL with your daughter you can have a social worker from the hospital she was born call and get you an at home nurse TO COME TO YOUR HOME AND assist you once a week at YOUR home if you need a second opionion or if you just want some reassurance that your doing the right things.
I needed it and and they came for the first year.
I congratulate you and totally undertsnd what you are going through my daughter is 3 now and completely fine
but those days were the most stressful days of my life. I was NUTS....the minute that alarm when off we paniced and didnt know what to do. We called the hospital a few times
at first and I think we almost called 911 we were that
panicked. Dont panice simple solutions check the leads
trust yourself to know the signs for lack of oxygen and always call 911 Immediatley if you think she is in respitory distress.
I wish you and your family the best and all of this
will pass and all will be well very soon
S.