Fibromyalgia?? Anyone Been Diagnosed?

Hi S.,

Here are some web sites:

http://www.drpodell.org/fibromyalgia_treatment.shtml

http://www.empoweredhospital.com/story_616.html

http://Fibromyalga.betterhealthchoices.com/nucca/default....

Hope this helps. D.

Hi S.,
I have a couple of friends with fibromyalgia and they are leading a productive life still working. I know that they are on natural supplements also. I also have testimonials that I can send to you if you are interested in what some others are taking and what it did for them.
I understand it is very painful and I don't know what it feels like so I can't say that but I can say that there are other options. Stay positive and lots of prayer and try natural remedies before drugs that may harm other parts of your body. If you go to www.healthmadesimple.net and click on Isotonix, there is a product called OPC-3 that people swear by.
Hope this helps.
Take Care,
L.

My mom has it and a friend of mine does also. My friend has had wonderful results and now she has one out of seven days of pain instead of seven out of seven. If you would like to hear more please write to me ____@____.com or fill out the form on my site and I will contact you.

J.
http://www.GetwithitGoGreen.com

I do not have it but I have a good friend who was diagnosed with it at 19 (she is now in late 20s). Her's was due to a sensitivity to sugar and sugar products. Another person I met that was diagnosed was due to processed foods. Once he cut out processed foods and eating healthy foods it went away. This was all found by trial and error on their parts - the doctors didn't help them with it. It might help to look at diet as a piece of the puzzle. Good luck!

depending on where you are located, i know of a newly formed support group. The group leader is a plethora of information and if you e-mail me offlist, i can forward her e-mail to you. You can reach me at ____@____.com

Thanks!

S.,
I know that the Internet provides a wealth of in information, but be careful !! Fibromyalgia, like all anti-inflamatory diseases mimic each other. Several years ago the Doctors thought I had Fibromyalgia, then Rheumatoid Arthritis and it turned out that it was MS. Make sure the Doctor tests you for Lupus, Lymes Disease, etc., Although, a good Doctor will do a complete blood planel and check for everything. (but ask to make sure) I do not mean to scare you but I have been down this road myself and with my Husband, so make sure you ask the questions.
Your question about disability is an open ended one also. It is not an easy thing to get. Everyone is turned down the first time and most times the second time too. Make sure you hire an Attorney to handle the process for you. There is a cap for their fee and it is worth it. The process takes a while and your income is based on your work history. I will be happy to discuss moreof this with you if you would like.
I am sorry to be such a downer, but none of this is an easy process.
I wish you all the luck in the world with your health and your legal issues. My prayers are with you and your family.
R.

I do have Fibromyalgia and was diagnosed only recently after nine years of suffering, after a series of physically traumatic events. There are so many misconceptions about this illness, that I would advise you to NOT believe everything you hear unless it is told to you by a professional or someone who actually lives with it. If you truly have Fibromyalgia, there are many ways to deal with the pain, fatigue and everything else that goes along with it, and NO it does not just go away! I have so much info to give, it would be impossible to do so here. If you'd like, you can e-mail me at ____@____.com and I can give you a list of resources and tell you more about my own experience and research.

As far as disability, you CAN qualify if you go about the process with some help from an attorney. I know many people, who I met through my online support groups, who were denied repeatedly until they enlisted the help of a disability attorney. Going it alone is not recommended because, despite the fact that most people are NEVER able to work full-time again, the government still makes it very difficult for you to prove that. I, personally, have not yet attempted this but I plan to in the near future.

My mother in law has had it for years, if you would like I could have her call you.

C. E

Hello
I have Fibromyalgia! along with other issues. I am only 38. I am currently fighting for SSD. yes I did say fighting for. I hear that if you are under 50 years of age and not cronicly ill it is hard.
As far as what to tell the doctors tell them how you feel on a bad day. they will do some blood work along with testing your reflexs. It is a long strong out prossess primarially becasue it take forever to get appointment with the specialists.
Hang in there and GOOD LUCK you are not alone.
K. B
____@____.com

My aunt is a med. professional and I'm pretty sure fibro is more of a "mental" disorder. NO, i am not saying your mental, but rather, that it may be due more to depression, anxiety, etc. it also makes perfect sense that to eat healthier makes for a healthier body. just take a look at all of the autistic children and people who suffer from celiac disease who have changed their diets to have less processed foods and be more organic and gluten-free, their symptoms (for the most part) have gotten so much better and tolerable. bottom line is, do your research, make sure you get the testing you should be getting done b/c too many doctors like to just give an easy diagnosis so they don't have to do the work. rule out what you can.

as far as disability; why would you try to get (free) money when you're a SAHM anyway? that doesn't really make much sense. people usually get disability b/c they have had to stop working due to their ailment or b/c they are lazy and just suckering the system.

I have it and I think that there is definitely a dietary aspect to it. There are some naturopaths who can do food sensitivity testing for things like wheat, soy, food dye, msg, etc. Perhaps some allergists do it too, but it's not the standard "scratch" or injection testing so you'd have to investigate carefully. There's a good one here in Pittsburgh, but that's probably too far away for you. I'd definitely recommend that you look into it - it could make all the difference for you!

I agree with the person who said to tell them how you feel on a bad day. I was diagnosed by my rheumatologist; it was tricky because I also have rheumatoid arthritis, and it was a number of years ago. I think it's a little easier now because they are more familiar with it.

As for Social Security Disability (SSD) - my fibro is NOT the reason I am not working (we elected prior to my illness for me to be a SAHM and homeschool our daughter) so I have never looked into SSD. However, I believe that part of applying for the SSD would have to be that a person had to give up working solely because of the fibro, and is not able to survive otherwise without the SSD. To be frank, based on what I've seen from a friend's experience trying to get this and from the stories I've heard from my friend who is an SSD counselor, if you have been living on your husband's income all this time it's unlikely you'd be eligible. My cousin receives SSD for fibro/chronic fatigue, but she had to quit working because she literally has days when she cannot function at all and therefore cannot keep a job, and she is not married so there is no other income in the household. I think that's the sort of situation the SSD is designed to benefit - people who cannot otherwise pay for a place to live and food and other necessities without financial help.