Our grandson who has lived with us since he was 2 months old was diagnosed yesterday with a bone protrusion over his right ear. It is growing rapidly. I can't find anything on the internet to help. Does anyone know anything about this problem? It's shaped like an egg cut in half length wise and seems to grow bigger every day. He goes for an MRI June 30. This child has been through a lot of stress dealing with his biological father.
I have nothing to offer up in terms of medical knowledge, but I am praying for your grandson!
R. Wells
www.athomecareermom.org
This doesn't sound like plagiocephaly. You might want to contact the Children's Craniofacial Association for information and connecting to other parents/grandparents. The Executive director is Charlene Smith. The phone # is ###-###-####, or toll free 800-535-3643. Web site is CCAkids.com or CCAkids.org. They ae in Dallas: 13140 Coit Road, Suite 517, Dallas, TX 75240. they have a newsletter you can sign up for and have lists of qualified physicians who treat children with craniofacial issues, they provide info/support, financial assistance, family networking and web trainings to name a few. You don't say where you live, so I'd go to www.familyvoices.org and click on the map of the US on the right to find the family voices center in your area. You can also find out if they have the Family to Family Health Information Center in your state. If they do, connect with the F2FHIC specialist there. You'll get support, info and referral, and assistance navigating the special health need maze. They are a wealth of information. I am the program supervisor for the one in Louisiana and it's a great program. Almost every state has one. If yours doesn't, the people at FV can help you.
Good luck. Let us know how he's doing. We'll be praying for him and for you.
Dear E.,
I have a friend who recently found out her child has Plagiocephaly~ better known as flathead syndrome, which is a craniofacial/skull condition. her little girl Addison, is going to a specialist in Dallas, TX. She's had to wear a helmet to correct the growth of her skull since April but has improved so well that if things keep improving the way they have been, she'll only wearing it a few more weeks.
Hope this helps,
T. S.
Hello E.
Unfortunatley I don't know anything, I just wanted to let you know that I am praying for your grandson's healing.
R.
