Chronic Diahrea in 20 Month Old

Updated on August 01, 2010
C.M. asks from Rogersville, TN
21 answers

My daughter is 20 months old and has chronic diahrea. She has had diahrea pretty much from birth. She has had a very extensive GI workup and they say they cannot figure out what is wrong with her. One GI actually said that some toddlers have diahrea and it gets better about age 5. I had never heard of that and I think that was just an inventitive explanation. We have had her on a gluten free diet as well and still the diahrea did not stop. She was on the gluten free diet for several months. Has anyone had this problem or have ANY idea what this is?!?! It really concerns me, especially since she is so tiny and does not weigh much at all.
Thanks!

I also forgot to mention an essential fact. Sorry about that.... Lillian is G Tube fed. She does not eat solids. Although she COULD eat/drink by mouth, she just doesn't. It is not dangerous for her to do so.. She is on Vital Jr milk through her G Tube. She takes 2 bottles per day. Sry about not mentioning that

I am having a REALLYYY hard time getting my point across. I think that comes with being interupted every 5 minute and forgetting what I wrote. lol Sry about the confusion. Lillian takes 2 bottles by mouth per day. She takes 40 plus ounces of her Vital Jr per day. SHe also does not grow well and is thought to have a growth disorder called Russell Silver Syndrome.
We actually started Lillian on babyfood and cereal at 4 months with no success AT ALL by 6 months. We had a ped that believed in early intervention and she was in therapy at 6 months. Then at 8 we added OT and at 12 months we added PT. There is no way to force her to eat or she just will not at all. Also she is very aversive to the spoon and purees. She will come more likely to eating chips, crackers and very crunchy things. Yes I know... it's strange! lol

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V.C.

answers from Louisville on

C.,Seeing that your DD isn't actually "EATING" is on the G-Tube (Gastrointestinal Tube/Feeding Tube)

I am wondering if she has an allergy to MILK?
diarrhea is one of the major signs of a MilK or latose intolerant or may be allergic to SOY if her feedings contain that ingredient, or she may NEED to be on a SOY feeding.
She may also need to see a pediatric gastroenterologist although you may be seeing one because of the G-tube.

Here is some sites that might have some info that you might find useful for your daughter.

http://www.medhelp.org/forums/gastro/messages/32957.html

http://adc.bmj.com/cgi/content/extract/79/1/2

http://www.steadyhealth.com/Toddler__chronic_diarrhea__no...

Something else you may consider that I have found is:

[Another mom took her child to see the gastroenterologist and he recommended doing 3 stool tests in a week b/c sometime one isn't enough to catch parasites if this is in fact the case. I did the three stool test and sure enough is was a parasite -
Entamoeba histolytica.

This type of parasite is very hard to detect in a stool sample b/c they tend to die before the test is actually done. So You have to take the stool sample right before you will take it to the lab and make sure they do testing on it right away otherwise they wont be able to catch this parasite.
if not caught this parasite can do severe damage to your intestine - amoeba dysentery.
maybe this is not the case with your young ones but its a thought and it doesn't hurt to check]

Gosh, I didn't realize there could be a MILLION and ONE reasons for this problem.

Here is another look at something else, unless things have been ruled out already.

CHRONIC DIARRHEA:

* diarrhea with undigested food particles, the toddler looks healthy: excessive drinking of fruit juices;
* constipation altered with diarrhea: post-infectious irritable bowel syndrome;
* coughing, hives, face flushing, watery/bloody diarrhea: food allergy;
* skin rash, watery/bloody diarrhea: celiac disease, autoimmune enteropathy, parasites; rarely: Crohn’s disease, ulcerative colitis;
* underweight, diarrhea: celiac disease, parasites, tuberculosis, AIDS, cystic fibrosis, congenital diseases of biliary tract, liver, pancreas or intestine, surgery of small intestine, marasmus, kwashiorkor, zinc deficiency.

Okay, and YET ANOTHER possibility.(Written by mom in her blog, I am giving you the site address in case you can contact her)
http://expatria.typepad.com/ex_patria/2007/09/enigma.html

Chronic Diarrhea in the Toddler

The differential diagnosis of chronic diarrhea changes during the latter part of the first year of life and into the second year. The most common cause of chronic diarrhea in this age group is irritable colon of infancy, also known as chronic nonspecific diarrhea.
This disorder is believed to be a variant of irritable bowel syndrome. It is not uncommon to find a family history of irritable bowel in parents or siblings.

Patients who have this disorder typically exhibit intermittent loose, watery stools. The presentation can vary from two to three mushy stools on one day to five to ten watery stools on other days. The intermittent nature of the diarrhea often is helpful in making the diagnosis. Stools usually are not expelled at night, although it is not uncommon to have a very watery stool immediately upon awakening in the morning. These children manifest normal growth if they are not placed on hypocaloric diets in an attempt to control the diarrhea. Because of the intermittent nature of the diarrhea, they often are misdiagnosed as having food allergies or recurrent episodes of viral enteritis. The assumption of food allergy is strengthened in the minds of the parents by the common presence of vegetable or other food particles in the stool, which are simply a manifestation of rapid transit.

The mechanism for diarrhea in this disorder appears to be altered gastrointestinal motility. Despite relatively rapid transit, absorption is intact and the child will grow well if fed adequately. Institution of a high-fat, low-carbohydrate diet is often helpful because of reduced dietary osmolality and the effect of ileal fat reducing intestinal motility. When fat reaches the ileum, secretion of gastrointestinal hormones, primarily peptide YY, slows gastric emptying and small intestinal transit, thereby providing some improvement in the child's diarrhea. We usually tell parents to encourage ingestion of meats, vegetables, butter, gravy, and whole milk and eliminate all simple sugars, especially sucrose and juices. Addition of fiber in the form psyllium mixed with applesauce also may aid in improvement. [Emphasis mine.]

That was it. As clear and as simple as that. I did more googling, now that I knew the name of the beast. It sounded, as my doctor friend Natalie put it, as if Jacob had read the article, so perfect was his presentation of all the symptoms. True, it did not explain or address the ulcers. But all the rest was there.

But here's the thing: We read this, and decided to try the high-fat, low-carbohydrate diet for one month. And today, only 24 hours after we changed his diet, he had two semi-solid poops. No more diarrhea. Just like that. And his ulcers are gone. Just like that.

We are holding our breath. The visit in the clinic in Germany is postponed, not canceled. We can't quite yet believe that it may be so simple. But so far, so good.

Apparently, Toddler's Diarrhea is fairly common. It is often connected with high levels of fruit juice intake - which is not the case with Jacob, me not being a fruit juice fan (you want fruit? then eat a fruit!). It resolves itself, as spontaneously as it comes - most kids are over the diarrhea by the time they are four. We could live with that.

But why did none of his doctors spot this? Again, taken from another site, the typical symptoms are:

1. Age between 6-30 months. Most are better by 4 years of age.
2. 2-6 watery stools per day. There can be periods of days without stools. Many stools contain undigested material and may drip down the child's leg from the diaper.
3. Normal weight, height, and head circumference growth curves without falling off.
4. No evidence of infection.
5. Stools are hematest negative.
6. The child looks well and there is no evidence of malnutrition and no history of abdominal pain.
7. Growth may be compromised if the diet manipulations that have been tried to control the diarrhea have not been enough calories.
8. There is often a history of colic, gastroesophogeal reflux, and family history of irritable bowel syndrome.

He had all of those symptoms. He - and his brother - all had bad colic. One would think that pediatric gastroenterologists - or pediatric doctors in general - would know about this. The fact that the gluten-free diet had an effect within a day should have made them wonder about fast digestion. It didn't. What is there to say?
______________________________

I hope something up above will be useful and helpful to you and your family.

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J.P.

answers from Nashville on

I am a peds nurse and I really think it would be a goog idea to try numerous times to get her to eat baby foof such as bannanas (witch help diarrhea), vegtables, stay away from prunes or pears. Oatmeal is really good for diarrhea. They call it the BRAT diet, Breads, Rice, Applesauce, Toast. But I know she can't eat solids, but I would try the baby food. I believe 2 bottles is just not enough for a 20 month old and I believe if she would start eating more it would help out. She has gotten use to not eating by mouth. I would really force that. Good luck and let me know if you have any questions. Also I would almost get a second opinion, Who do you see as a doctor right now? Jennifer

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S.O.

answers from Greensboro on

C., I am not sure what a G-tube consist of, but I will not be surprised if the 40 plus ounces of her Vital Jr per day is whats causing the diahrea. I am a grandmother of 6 grandchildren and 3 grown kids. My youngest always vomitted what he ate so i fed him a lot of 'Cream of Wheat' or Cream of Corn and rice soup made with milk...It is a Puerto Rican thing. If our kids did not eat the normal we found other ways to get them to eat at least what was healthy. The 'Cream of wheat' you buy in the cearal section of the supermarket and instead of water we use whole milk, sugar, a pinch of salt and the yoke of the egg, so he did not just get fiber, but protien as well. The same with the Cream of Corn...They sell that in the Spanish section of Goya foods in a plastic bag...Now, I can hear you say, 'I thought Cream of Corn came in a can,' 'NO' it is a flour type of corn and you cook it into a nice smooth cream just like the cream of wheat...Either cream can go into a bottle or probably through the tube. It is GOOD and makes a child GROW.

I am a researcher on natural foods and I would personally research all affects of meds and find alternatives I could do with natural vitamins and supplements, vegetable juicing and much more other things...You can go to a Health food store and talk to them...The internet is also a powerful tool for research...I would not just go by what doctors say...They are trained to tell you what they think you want to hear, but they never have the right answers.

These are the only things I can think of trying...One more thing, the word of God says, 'the power of the tongue can be deadly' you can either confess death or life over your children...Now, you do not have three needy children, but three AWESOME WONDERFUL HEALTHY BABIES who just need a little extra attention and who doesn't...LOL (Laughing out Loud). Also proclaim healing over your child, if you don't no one else will...Hope I was able to help. Dolores

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L.M.

answers from Raleigh on

Hi C.,

I have had Crohn's disease since I was 15, (half my life now). I have also struggled with ADD, depression,...etc. I have recently learned the root cause of all these diseases...Cell-wall-deficient bacteria that gets in our immune cells (white cells) and paralizes our immune system. Your daughter is probably fighting a drug-resistant bacteria that cannot be picked up on tests because it is hidden inside her immune cells. I am blown away by the incredible information at www.marshallprotocol.com
It is not really for young kids, but the information there will help you understand a lot. Also, go to www.miraclemineral.org
This stuff is curing everything from Malaria and AIDS to Autism and it IS very safe for children. They give it to babies in Afica and everywhere. Order some MMS from globallight.com and they will send with it audio CDs to help understand how it works. It kills pathogens without touching healthy tissue.
Best of luck to you,
L.

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D.B.

answers from Memphis on

When my 19yo daughter went to a chirocpractor for a dislocated collar bone, there was an elderly woman in there that had suffered for years with chronic diarrhea. She had been to so many doctors she lost count & no one could help her. Her last resort was this chiropractor. Within 2 months she had her first solid stool in years and never felt better. She came to him for regular adjustments & she said she had never been so happy. I would consider looking into a chiropractor. Your doctor may blow off the idea as some have a snobbish attitude toward chiro's, but they do wonderful work.

My 19yodd went to him when she was 14 after 4 orthopedic doctors couldn't help her with a dislocated collar bone. They wouldn't operate & she was suffering every day. She couldn't even brush her own hair. She had pain down her arm & her fingers were numb all the time. One ortho even said 'it's not suppose to do that'...we wanted to give him a "no crap Sherlock' t-shirt but we passed. As our last resort we took the advise of a friend & went to this chiro and within 2 weeks of treatments the pain had stopped. Within 3 months she was playing volleyball!!

Sometimes things just get out of whack & you will be amazed and what a chiro can do from hip problems to constipation/diarrhea issues.

Hope you find an answer soon. I've NEVER heard of it being normal for a child to have diarrhea. How long did you have her on a gluten free diet? And did they test for celiac disease? When I look at all the symptoms your children have, many of those are associated with celiac disease. I'm just curious.

Check with your insurance company. Many will cover X amount of chiro visits/year. Ours was generous & gave us a deduction on top of what our insurance covered because she was bawling in his office & he hated seeing her suffer so much.

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K.M.

answers from Fayetteville on

Are you seeing a Registered Dietitian to help with the feeding and adequacy of feeding. It may be the formula or rate of formula that is causing some of the problem. It may need to be changed to a formula with fiber. If she truly doesn't have any malabsorptive issues than a standard formula would be better as it has less osmolality. If she does need the Vital HN for specific GI issues there are fiber modules that can be added to help bulk the stool. I would look for a dietitian that specializes in pediatrics. They can help you based on history of your child, type of tube she has and her kcal and protein needs to promote wt. gain.
God Bless!

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J.S.

answers from Chattanooga on

Hi C.

My son had the same problem and the GI doctor told me to look at the amount of sugar in his diet. I didn't think he was getting that much, but when I took into account all the fruit and kids snacks and drinks he was getting a lot of sugar.
I have to limit fruits, No apples at all, they give him diahrea everytime. No juices, just water. No cereal with sugar, no kids "treats". Gluten may not be the problem, sugar or something else may be the problem. Do you keep a food diary? that way you can start to see a problem food that comes up? hopefully you will be able to find the culprit. Good Luck to you.

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S.M.

answers from Knoxville on

C. I have some good news for you if you could e-mail me or call me I would love to share with you an all natural product that my family takes we started taking it for various reasons and have not been to the doctor in 2 years because of it, it is having amazing results especially for diarhea, ADHD and asthma,all five of us have dozens of testimonies from it too many to share in such a small space you can e-mail me personally at ____@____.com or call me at ###-###-#### after12pm
Life will get better if you will give this a try,
Hope to help,
Sincerely, Sheri M

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K.L.

answers from Knoxville on

Wow,do you have your hands full!!! I have 2 special needs kids and I thought I was busy!! Maybe it is because she is not eating solid foods. Have you tried feeding her baby foods by mouth? I know a little boy in my son's class has a g-tube and they also mix baby food in his milk and give him that in his g-tube. Not sure how his bowel movements are. But can find out. Haven't read responses yet but bet you get some great advice. My e-mail is at the bottom feel free to e-mail me subject: mamasource Good Luck!! K.

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C.P.

answers from Nashville on

More than likely the G tube feeding is what is making her stool look like diaherra. Because she is not getting the solid food then the stool will be liquidy. I am not a nurse but I work in a hospital and I see this thng all the time with adults that are on tube feedings.

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K.S.

answers from Huntington on

I don't think it's surprising given that her intake is strictly liquids. There aren't any solids from which to form a solid stool.

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E.C.

answers from Chattanooga on

Your daughter needs to be seen by a DIETITIAN WHO WORKS IN A PEDIATRIC HOSPITAL. You may have to go to a large children's hospital to get that kind of help. You have seen a GI specialist but were they experienced with children?
I previously worked with the developmentally disabled children and currently work with adults. It can be quite challenging to figure things out. There could be multiple factors influencing the situation. I am wary of some of the advice which has been given you for that reason.
Having worked with a gluten free diet ( I am a dietitian), you have to eliminate ALL sources of gluten. There are many hidden sources of gluten, so not easy to do.

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J.D.

answers from Raleigh on

I don't know what it is like to have a special needs child, but my 5 year old would have diarrhea all the time unless we fed him atleast 1 - 2 bananas every day. That was his full fruit intake. He finally stopped around 4 years old. The doctors were never concerned because he was gaining weight slowly and never seemed overly dehydrated. He still is having some gastric problems such as reflux and vomitting. I don't know if you can make banana shakes or something for your daughter, but it is a thought.

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J.C.

answers from Chattanooga on

C.,

Have you tried changing formulas? When my daughter (4 years old) was on Elecare and Neocate Jr. she responded very poorly with diarrhea. When we went to CHOP they told us that there is a formula that Boston has started using (maybe developed?) called Optimental. They recommended it for us because she is so sensitive to food and often does not want to eat(she has Crohn's Disease). Feel free to PM me. We have different situations but maybe similar struggles - it sounds like some of the stuff you guys are going through are autoimmune as well.

Also, probiotics may be helpful. We use VSL#3, specifically developed for Crohn's patients. Maybe there is one for Lillian's diseases. You can also get probiotics by making certain foods (pm me if you want them).

I hope these ideas help.

J.

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R.C.

answers from Huntington on

I don't know what to tell you that might help. But we will pray and take her to God. He's the one that can heal he. R. C

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J.C.

answers from Wheeling on

Check your insurance coverage, can you get to a Children's Hospital out of this area? Sometimes doctors around here just are not up to date on latest medical news or are just set in there routines and don't choose to consider anything out of the ordinary. I know it is alot to have to travel out of your area, but it is worth a try if you have not yet been elsewhere.

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A.F.

answers from Nashville on

could she be allergic to the milk?

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J.S.

answers from New York on

My daughter had chronic diarrhea turned out prevacid and elecare vanilla was the only combination that worked - wouldn't drink the formula or eat without the prevacid and has milk protein allergy. Find another GI dr u need a combination of things probably.

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M.W.

answers from Huntington on

Dear C.,
My heart goes out to you! You have a special place waiting for you in heaven!
Without any solid food, it is very common to have loose stools. Breastfed babies often have loose stools until solids are introduced. So, if you are just giving tube feeds, it would be expected to tend to have looser stools.
People often get diarrhea when a new tube feed formula is introduced, therefore the Dr. usually says to mix it half & half with water, gradually decreasing the amt. of water added. Still, frequent (water) flushes are always esential to keep the formula for building up inside the tube. It is possible, you are not giving enough water with the feeds.
Try giving her (plain, no vanilla or fruit flavors) yogurt daily. Yogurt can help the gut build up the necessary probiotics necessary for proper digestion. Yogurt, mixed with some water should go down the tube just fine.

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P.B.

answers from Raleigh on

Id find a good Naturopathic Dr.

You might try digestive enzymes and/or probiotics (acidophilis) The enzymes help break down the food better & make more of the nutrition available for the body to absorb (therefore better processed) and the pribiotics are the good flora that naturally occur in the digestive tract. They can be diminished by antibiotics or diet or other reasons.

These are good, harmless, non-invasive ways to try.
Boosting her fiber may help, too.

Good luck!

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L.P.

answers from Louisville on

I have heard of "toddler's diarrhea" but I don't know how valid of a diagnosis it is.
Maybe the g-tube irritates her stomach, or she's just not eating enough solids to bulk up her poop. Can a 20 month old survive on 2 bottles of milk a day and nothing else? She needs veggies and fruits and crackers and things. I don't know anything about her specific disorders (although I did have a cousin who had a cleft palate and lip at birth and was fed through a g-tube as an infant but he's 18 now and small but otherwise normal) but I think there must be some specialist who can work with her on her "oral aversion".
Find new doctors or a therapist or something and get her some serious help! Good luck.

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