Child Number Three Will Not Grow Suggestions?

Put her on Juice Plus Gummies...Juice Plus is amazing! It is 17 fresh, raw organic, dried fruits and vegetables which come in capsules for adults, Chewables and Gummies for kids.

There is amazing research on Juice Plus and I have personally seen babies who are JP+ babies...their moms took JP+ when they were pregnant and those babies hold their heads up sooner, grow better and advance on the average faster than their peers. If you want more info, contact me! K.

Dear E.
I did not grow for three years but I was older then your daughter when it happened. The reason it was so worrisome to my mom was that I had an older sister who was 14 months older and she dwarfed me from the ages of 5 to 9. In the end when I finally did get growing I reached the same height. We are both just past 40 now.
Have you discussed nutrition with your doctor? Freom the research that I have read and the growth problems that I have been aquainted as a trained biologist with an interest in healthy living and nutrition. Some lack of ability to digest and mild allergies can be limiting. The ones I know of include the inability to digest food correctly which can be helped by a enzime therapy which I would guess is available both at Fred Meyer and at Better Foods. Enzymes are the molecules either present in fresh food or produced by the body that break down the food to a level that the body can absorbe it and use it. There are some great videos on digestion though it is for horses it works the same in humans so you might find them interesting. http://www.omoleneuniversity.com/
You might ask Delana at better foods as well she is a good resource and has had lots of education on diet.
The other thing I would suggest if you are not already doing it is to give lots of fresh food or fresh frozen in the form of a smoothy works really well for many children. It helps a lot with finiky eaters. I can pack a smoothy with fresh fruit or frozen fruit and add other things to it like carrot juice which is packed with nutrients.
I hope this helps you. By the way most doctors that graduated more then 10 years ago didn't even have to take a nutrition class in college. J.

My oldest daughter will be 4 in 4 months and is still weighing in at 29 lbs. I seem to recall her leangth at her 3 yr check up being average though. She can still fit into some 2T clothing as well, although she is mostly in 3T for the leangth now. Her twin brother is right at 32 - 33 lbs, is taller than she is, and wears 4T-5T clothes. My youngerst daughter currently weighs in at 23.8 lbs, but is of average leangth. My oldest has accidentaly put on a pair of the babys pants, and although they fit her like capris in leangth, they fit her around the waist.
I am 5'8, my hubby is 6'2, we both have pretty average builds ( he's on the skinnier end of average and I am on the chubbier end).
I don't worry to much about thier wieght issues at this point. They eat healthy foods and eat a normal amount for thier ages. Some kids are just built differently. A mom I know has a twins exactly my twins' age and her son has to wear suspenders to keep up his 24 month pants. His twin sister is in 3T stuff.
Try not to worry unless your doctor is giving you a reason to.
Sorry that I don't have any "ideas" for you, but hopefully this will help ease your concern

Have her docs ordered a growth hormone level? There are medical reasons other then chromosomal abnormalities that can effect growth hormone! just make sure her docs are doing a through hormone assessment.

E., I really don't know what's causing this, but I think that a child that isn't growing can't afford to be picky about what she eats. At this point she should be eating super healthy foods and nothing but. There's a good book about ways to sneak veggies into her foods called Deceptively Delicious, it's a little bit of work, but worth it in your case. Also, do you give her any vitamins? Don't give her choices on her plate. Serve the most healthy part of the meal first, as opposed to putting a plate in front of her with 3 or 4 foods and she will eat the least nutritious first and never make her way to the veggies. Just a thought. A.

Hi E.,
I am wondering if your pediatrician has ruled out asthma?
This is going to sound a little strange but my twin has a daughter who didn't grow, was still 23lbs when she was 3yr. One major symptom she had was constipation on a regular/daily basis? Also, when my youngest was born she had pneumonia at 12 days old then again at 4 months and diagnosed with asthma which I had to treat with a nebulizer. She too would be constipated especially during an asthma episode. She didn't crawl until she was 13 months and walked at 17 months which was 8 months later than my first. Come to find out, it just too much energy/oxygen to walk.
Due to the decrease in oxygen the paristalsis (contractions) in the bowel are slowed to reserve energy and direct oxygen to vital organs. A new doctor for my niece looked beyond the constipation, tested her histmine levels and breath capacity and diagnosed her with asthma and started treatment. Within one week she started having bowel movements on a daily basis (without enema, mineral oil etc..), she grew 4-5" and gained 13 pounds in 3-4 months. Basically she could breathe, her muscles were happier, she had more energy and endurance. The same held true for my daughter Rita when we started to get her asthma under control.

I know it sounds weird but I thought I would at least let you know our experience with growth problems. Both girls have always been within the 0-5% range on the growth scale but now they are growing and not falling off the chart any longer.

Hope this helps. Feel free to ask questions if you would like.
A Little about me:
I am 44 and a mother of two girls; Sami 14 and Rita 9. I only work part-time and not when my kids are home which is a blessing. The gift of laughter is what keeps me going and enjoying my family.

Not to freak you out or anything, but there are so many things that could cause that. I know that when they are babies, a failure to grow can be caused by heart issues. What I'm not sure of is whether or not that always shows up right away. Or it could be a hormonal issue. Has the doctor done any tests to try to diagnose the problem? If not, I would ask.

Hey E. L,
My Daughter was the same way and I was constantly taking her to the doctors to find out what was wrong with her as the schools said there was something wrong or I wasn't feeding her. I finally found a naturopathic doctor who said her metabolism was so high that all the food she ate just kept her going and when she go older it would kick in and she would grow. She was 4 feet tall from 4th grade until 7th grade and weighed 80 lbs. The summer between her 7th and 8th grade she grew like 5 inches and gained 20 pounds. She is now 19 and is 5'8 and weighs 155 lbs so keep your chin up I know what you are going thru and how hard it is.
C.

Oh MY! This sounds so much like my little daughter. Her weight still bothers me today. She is now 5 and weighs 30 pounds. We took her to have chromosome testing also. She was also checked for celiac diesese. I was told just about everything possible. The last opinion was that she was going to be incredibly tall and this sort of thing happens with girls who become taller later in highschool. "late bloomer". From my prespective, and after dealing with it for years, it seems that she is just to busy to be bothered with food. So I try to make everything she puts in her mouth a high calorie food. Over the summer she took gymnastics and it seemed to help in alot of ways to streghthen her muscles and also to work up an appetite. I hope this helps.

has she had a blood gas run? I am a nicu nurse and one of the other nurses i work with had a grand daughter that would not grow. They ran a blood gas and she was found to be acidotic. she has renal tubular acidosis i think is what they called it. she had low muscle tone and was late to crawl and walk. she sees a kidney specialist, and was put on bicarb, and now she is growing. I'm not saying your daughter has the same thing, but they do sound similiar.
mother of 2 in washington

Further investigate, definitely! You want to cover all of your bases, these ladies have a lot of good information for you.
Then, if all is said and done and she just needs beefing up: That's what my little one went through, she was a failure to thrive for about 6 months. I just gave her lots of what she likes. I added extra butter to her mashed potatoes, used whole milk with her and put it in everything, I even was using creme for a while in the beginning which has more fat. I also added creme in her milk to drink in the beginning too. She loved peanut butter, so I gave her loads of it, macaroni & cheese, all along with healthy sides of veggies and fruit of course. I don't usually buy cookies, but got her those danish butter cookies in a tin, they are made from butter and are totally fattening, cheetos, etc etc. Just be careful not to indulge yourself!

I have a son that is going to be 9 in 3 weeks and we just went through is clothes and gave away his 4t pants and got rid of his 2t underwear. The pants had just now gotten too short and the underwear, well... I decided the tellatubbies might make him feel a little immature! He is now 46 in. tall and weighs 43 lbs. My other son that is the same age as him weighs 67 lbs, and is 54 in. tall... and is very average in size.
He has what the doctors called "bone growth definciency"... which means, his bones don't grow at a steady continuous rate like other peoples do. He grows VERY slow and seldomly has growth spurts... in fact, the first one I have ever noticed (you can tell when they want to sleep more, eat more, get grumpy, etc.) was in the past 3 months.
The most important two things for my son are lots of sleep (kids grow in their sleep) and eating lots of vegetables. We have started in the past two years or so, to have double vegetables at each dinner, and he eats veggies for snack every day. While it hasn't made him shoot up, it has put a little meat on his bones so to speak so he doesn't look sick! And I know it's healthy meat!!!
Feel free to contact me if you have any other questions.

Failure to Thrive...UGH...hate that phrase! All 3 of my kids have been placed in this catagory because they were in the 3% on the curve. Someone has to be at the bottom of the curve to make a curve, right?

My daughter is 8yrs old, 45lbs & 45" tall. She wears between a 5T & 6/7 depending on the maker. My husband had a grandmother that was a teeny tiny thing and my daughter is totally following in her footsteps.

When the DRs told me to add fatty foods to my daughters diet, I refused. All you are doing is setting your child up for weight issues as an adult. I have struggled with weight...not fun. I did the opposite and now everthing we eat is orangic. The kids are now in the 10% and all are healthy. Happy, healhty, active and small children.

My girlfriend's now 13 ear old daughter had a similar problem and they discovered it is siliac. It is a form of wheat/gluten alergy that inhibits the body from absorbing the proper nutrients in order to "grow". I would have her alergies tested first.

Best idea, make sure she is getting a nutrition supplement to make SURE she is getting all the nutrients she needs. Many times, when the brain is having a "growth spurt" the body gives the nutrition to the brain and take a plateau in its own growing. I would talk to your doc about Pediasure or some other nutrition supplement, it can't hurt.

Are there any other symptoms? Look at things you've never thought of like hair texture, fussyness,ect.

It doesn't sound like your daughter is that far off the average in height and weight, for girls. My daughter has been one pound heavier than you describe (30 pounds) forever.
You said your dtr. is in physical therapy, so maybe the doctor has diagnosed something, but other than that, could it be she's just a slightly built girl?
I know we have friends whose baby boys weigh close to my daughter's weight, and our MD says it's normal.

IF you are of northern european descent, or even not, you may want to have your child checked for celiacs disease or gluten intolerence. It is quite common in people of northern european descent. And one of the main simptoms in children is failure to thrive and also diarrhea. Their is a blood test, but a small intestinal biopsy is the most conclusive test. Give it a try.
M.

Hi E.,

I have friend who's daughter was & still is small for her age (10)and a picky eater for years and stomach ache alot.
When she was 7 she was diagnosed with Celiac disease - allergic to wheat, rye & barely. She is now on a Gluten free diet and gradually gaining weight, but will probably always be/have a small frame. So go back to the doctors and ask about getting her blood checked for this disease or at least do some checking on the web for more information about this growing disease.
Good Luck,
L.

I am assuming, since you are seeing a doc, that she has had thyroid tests... more than just a cursory blood test....

Maybe she isn't going to be tall. I'm not as tall as my parents. (they are 5'5" and 6') I have two girls. Both weighed under 16 pounds at a year. Now one is 12 and weighs 70 pounds, wears kids size 10 clothes, the other is 10 today and weighs 60 and wears size 8 clothes.

My oldest is very long of limb (though short) she has the build and muscle structure of a long distance runner. The other is built more for strength and speed. She could already do pull ups in 1st grade.

You have four children, and maybe the doctors note some muscle tone development problem, she may just be different than the others. There may be a food absorption issue as well.

If she is picky about foods, she may be unable to explain that certain foods she eats is not agreeing with her. Check on allergies. My youngest would always complain about stomach aches and refuse to drink her milk at dinner. Turns out she had a milk allergy. Their little bodies know what they need yet their heads don't know how to explain it to you because this is all new to them. Your daughter only has 4 years experience in this life and body.

My brother was 90% when born, and then slowed down several times during childhood. He was a scrawny little thing and they wanted to give him hormone injections because his growth would stall for long periods. In the end, they didn't and he still is over 6 ft tall. I think taking a break from growing is not always a bad sign, but sometimes just who they are. Of course, talk with your Dr to see if it is something he's concerned about.

hi E.--
from what you've described, id be worried too. suggest an endocrinologist, check things out like thyroid, pituitary, etc...get with a pediatric specialist, not just your fam doc, and the sooner the better. when kids lag behind in growth and milestone achievements, it can spell trouble later--big time.
go ask the pediatric nurses at your nearest BIG hospital, and find out who'd they'd take THEIR kid to. then you'll have it.
GO.

Hi E.,

I just recently found out that I may be allergic to certain foods. I've started reading books on food allergies and have discovered that many ailments can be related to what we eat.

You may want to look into an elimination diet or allergy testing. By elimination diet, I mean removing foods that you suspect she is allergic to or has an intolerance of. Signs of an allergy or an intolerance include rashes, constipation, hyper behavior, sluggish behavior and many others. I recommend going to the library and checking out some current books on food allergies, or suggest this to your doctor.

I hope that your answer is something this easy. It may not be fun, but at least it is an answer and there is something you can do about it.

Have you looked into your family background? I know that many times people have genetic stuff going on that you might not think about. Just an idea becuase if you can find something it might help you figure out what might be wrong. dont give up hope she might start growing like a weed tomorow! I will keep you and your children in my prayers.

E.,

If your daughter is eating healthy foods, then I wouldn't worry about it until your doctor does. There is a gal at my church who has 2 kids on the large size, and one normal sized child. He looks like he's from a different family (he's not!). You might check into recipes that would include hiding pureed fruits/veggies just so that she's getting good nutrition. Good luck!

My second (I have 5) child went through the same thing. The medical "professionsals" put him through hell with every test under the sun. Some of the results took several weeks to come back, which had me panicked, thinking he had some rare deadly disease. The last doctor I took him to, was very reassuring. He said there was nothing abnormal showing up in any of the tests. Some kids just get their growth later than others. When most kids stop growing, he told me my son would probably continue to grow for another few years. That is exactly what has happened. My son is now 18 years old, still growing and is 5' 10". Try to relax. If your daughter has the growth hormone in her blood and her body is accepting it. She will be fine. At one point (around the same age as your daughter) my son hadn't grown and had actually lost a pound and a half. He has always been very active, played sports and is a great kid. Feel free to contact me if you have any questions.
Relax and good luck.

Children grow at different rates. Some take after their Mom's and some their Dad's. If she has been checked by doctors and they say that everything is normal then relax.
I am a mother of 7 and have been through what you are going through. My now 29 year old wore a size 8 in the 8 th grade. They did thousands of dollars worth of tests and found nothing wrong. Then that summer between 8th and 9th grade she had terrible pains everywhere and again more tests and nothing. They were growing pains and she grew 4 inches that summer and another 3 over her freshman year plus puberty hit and she filled out over that time and she was average with her class mates. All that worry and for nothing so relax and enjoy your daughter. She will be grown all to soon. I hope this helps. C.

Does your child have ear infections?
My daughter had several, and was very small for her age. After we cleared up the ears her growth rate returned to normal.
I have another daughter that was about that size at the same age, also very picky eater. I tried everything too, but finally figured that she just is more sensitive to life. She is 21 now and normal in size, so be extra huggy with your child and she will come around too. Keep on praying for her too, that always helps. K

Hi E.-

My daughter had a period of three months where she did not grow, so our doctor sent her to a growth and nutrition specialist. They can do a test ( x-ray of your child's hand) to determine if your child's "bone age" matches with their chronological age, or if the bone age is lagging behind- you might suggest this. Our issue was more with weight gain and if it makes you feel better, our four year old is 27 lbs. - I am not sure how tall... but she is heathly so that is what we focus on...

Good luck!!

Have you discussed referral to a specialist, like a pediatric endocrinologist? That specialty would be helpful in sorting out any hormonal type of problem.

My little girl is the same way. And also has had every test under the sun, and everything always comes back normal. She to is a picky eater and compared to her friends does not eat very much. I just keep giving her whole milk and other fatty foods, since enough fat is so crucial for proper brain and eye development. But, also is a very smart happy kid so I just continue to assure myself she is fine that this is just who she is. There is nothing wrong with just being small. I think doctors sometime get so caught up in growth charts and what is average, but not every kid fits into that.
A.
~work at home mommy
www.thebest4yourfam.com

Hello ~

I have a tiny 7 yo son (39 lbs, size 4T). He has Celiac Disease, which may or may not be related to his tiny size. We see a "growth doctor" . I would suggest you get a specialist in growth to look at your daughter. We use Dr. Karen Selva at the Pediatrict Endocrinology Clinic at Emanuel. Good luck - L.

Hi E.!
My name is A. Swift and I live on a ranch out of The Dalles (up Eightmile).
I read about your little girl and her not growing very good and it hit real close to home. My daughter had a situation with her son several years ago. She has always been very careful to feed her children very healthy, but he was a picky eater, very small for his age, low immune system and food allergies. The doctor couldn't find anything wrong with him. She later got him on a wonderful nutritional supplement and now 4 years later he is 7 1/2, very healthy, very average size, food allergies gone, he eats like a healthy active boy!
What a blessing to see him so healthy! If you are intersted in talking to her about what she did, I can introduce you on the phone. She lives in Moro and has 4 beautiful children too. Her son is the oldest and has been followed by 3 beautiful girls!
let me know if you have interest!
A. Swift ###-###-####

E.,
I am just now at 12yrs old getting my son on growth hormone. He was 17lbs at a year and wore 2T till he was at least 4yrs. old. He was always considered negative percentile on the growth chart but he created his own curve. My suggestion, ask about what's called a "bone age" test. It is a simple x-ray exam. To check and see if her bones are growing at the proper rate. If they are, then ask to check her growth hormone levels. Kenny was correct on his bone age but he has absolutly no growth hormone in his pituitary. He is 4'6" at 12yrs old. Hard when his older brother is 5'8" at 16. Just a thought. I wouldn't recommend starting growth hormone just yet though. It is ridiculously expensive and it does have some scary side effects. Kenny and I along with the rest of our family had a discussion and He really wanted to pursue it. Being tiny isn't the worst thing that she could be. Just weigh all the positives and the negatives. I hope this helps you. Good luck!

You may want to look into Chinese Medicine. If you can find an Acupuncturist who is trained in children. Often Acupuncturists utilize nutrition. I know that my sister's son was small and the doctors were suggesting that she feed him ice cream and a lot of it. But, that was triggering asthma. In chinese medicine it is not good to eat such cold things. He was actually quite coordinated and plenty strong but the doctors did not like him being under the normal percentile.

I would suggest finding a way to nourish her with whole foods and healthy fats-avacado,nuts, fish oil. These are not just essential to her physical health but her brain growth also.

Find a health practitioner who is into nutrition etc. If you ask a MD they do not have a lot of knowledge on nutrition. And you need more than a food pyramid.

Good luck hope this helps.

Hi E. I have a daughter who would not grow and she hit her mile stones late, my kids Dr. suggested giving her pediaSure which she loved and I gave her food hi in protien, like peanut butter and jelly sandwhiches, macaroni aand cheese, my dr even suggested giving her cream not just milk in her food, my kid is really picky about what she will eat, but she started to gain weight and now her weight is just fine. I hope this helps good luck.

My son's low muscle tone was Sensory Integration Disorder, but he had no growth problem.

i have not been through what you are experiencing but I knew someone with child going through almost exactly the samething.... I would see another pediatrician. Get referrals to Dr Tripp at mary Bridge he is the developmental pediatrician. Or better yet I would take her to childrens in seattle...... and the best way to get in there is to just take her to the ER at childrens in seattle...

If this were happening to my child I would be veryagressive about getting answers....

I agree with Lori. If you over compensate for her slow growth now by giving her lots of fatty foods you're just going to set her up for weight problems later on. If anything go more organic because a lot of the growth hormones, preservatives, pesticides and other junk they put in foods can cause further problems.

My daughter is 3 1/2 weighs about 26 lbs. and is 34 1/2" tall. She and her younger brother have both always been at the bottom of the growth charts. At first we were concerned about how little she was and her doctor had her go in for extra weight checks, etc. Eventually we decided that's just who she is. She's active, happy, and smart and to me that's the best indication that she's healthy.

These days they use growth hormones but I think when they hit teenage. Has bad side effects. Try to add veggies to her diet. You need to offer the same thing over and over until she actually starts eating it. Make a rule - she doesn't have to eat it, but has to try it. It might take an year before she starts eating one veggie. Put a small plate with the veggies on the table first while she is "waiting" for her dinner to come and give her choices but let her pick up only one that she will "try". Desert bribes also work sometimes. She needs to eat an veggie to get an ice-cream or something like that. Good luck!

Hi E.,

I read your request to my husband, who is a pediatrician, and he asked whether your daughter has been seen by a neurologist. If not, he said he'd recommend it. That said, he has some patients who aren't growing sufficiently and have some other symptoms, but none of the specialists have been able to pinpoint a cause.

It sounds like you are taking great care of your little one. It must be a lot of work to have four little ones and incorporate doctor visits and PT. I wish you and your little girl all the best.

Hi E. ,when you have a low tone it is hard to thrive therefore to grow.The nervous system is either in a survival or a thriving mode.I have 2 questions ,has your daughter done a lot of belly crawling and creeping on hands and knees? those activities in the first year of life are critical to developing a brain and neuronal connections that will allow thriving.If you want to know more go to my website canelledemange.com you can then call me for more lovingly C.

Hello E.--
My third sister was the only one of the five of us that DID grow "normally." I was the smallest kid in my SCHOOL (including the kindergarteners!) until 4th grade, when I gained an inch or two (one kid in my class was 6 feet! in third grade! ... and fourth grade was the year my mom handed my favorite overalls, because I had finally outgrown them, straight down to my sister in kindergarten ... ). I'm average, my first two brothers are tall, my sister is a couple inches "short," and my last brother started drinking caffeine very early and so we all blame that for his "shortness"--which I think is actually average for a man, but short compared to my two brothers.

The smallest of us were the first two--I grew 4 inches in 3 months between 7th and 8th grade (I don't remember any pain, but I think I slept A Lot), my brother hit about seventh grade and just started growing and growing--so fast his back doesn't properly support him, I hear.

My first had "Failure to Thrive," which was a ridiculous way to describe her, but whatever. Luckily, the ped diagnosed her with an unexplained vitmain B deficiency--one shot solved the problem (which can cause serious neurological damage). Probably that was already tested in your blood workups, but you could ask. I think it was triggered by a vaccine, and keep a close eye on the kids after vaccinations.

I think the moms who suggested some kids are more sensitive are probably right too--the small of us were WAY more apparently sensitive.

I also avoided the ice cream route--the ped would talk out of one side of his mouth about the numbers of obese kids and then tell me to feed her as much ice cream as she could hold ... um, no. We did use whole milk, but that was more because I'm organic than because I wanted more fat.

I have lactose intolerance, which like celiac can affect nutrient absorption (tosses the food out before you are done digesting it, coats your system with mucous) ... one thing being of northern European descent should have given me a better chance on, but it didn't ;).

My kids are all thin, but growing and happy ...

I would demand to see another doctor. The growth issues could be due to a nutrient deficiency but the fact that she could not sit up at one and didnt walk until 2 is worrisome. Something is not right there and I would demand that if my doctor couldnt figure it out then he or she send me to someone that can! You can always call your insurance company for a list of pediatritions in your area that are covered. I am a nurse and work with a lot of pediatricians if you need some suggestions let me know.

If you truly believe something is wrong go with your mom's intuition. Odds are moms are right.

That being said my son is 3 1/2 and weighs 27 pounds and is just at 36" tall. Ours is a bit of a different situation in that he is an adoptee from Russia. When we picked him up at 23 months he weighed 19 pounds and I can't remember how tall he was. At 23 months he was wearing 9-12 month clothing. Per our doctor's suggestion we put him on an iron rich vitamin supplement, fed him full fat milk, cheese and yogurt and other full fat foods. Sweet potatoes, avocado, fish, cheese etc. He is growing, but not at the rate one would expect. Our doc doesn't seem to worry as he is totally proportional. He's in the 10th percentile for height, 15th for head circumference and just under the 5th for weight. Our goal was to just get him on the chart for weight.

Some children are more petite than others. Make sure she is proportional and that (although they may be small) her numbers are increasing. But at this age many children stop growing for a while. We had about 8 months of no growth and all of a sudden he's grown about an inch and put on about 2 pounds.

I don't know. My daughter goes through spurts where she won't grow for a long time and then she'll suddenly put on a few pounds and grow. She's turning 5 in a week and only weighs 34 lbs. She's by far the smallest in her class but she's proportional with her height. It's just the way she is. She has some 24 month old clothes that she's finally getting too tall for but her 3T is the perfect size. She also goes through times when she's a bottomless pit and when she just doesn't really want to eat anything.
For the most part, as long as she is happy and healthy, there isn't much to worry about. You might check with St. Jude's Children's hospital to see if there might be something out there that can prevent normal growth that a regular doctor might not catch. I'm 5'2" and the shortest in my family by far yet I was one of the biggest babies born, my parents are around the 5'9" area along with some of my siblings.
I've known some families where either really tall or really short family members skip a generation or two.
If your family and your husband's family doesn't have this type of background then you should probably do some online research and possibly contact St. Jude or a more local Children's Hospital and see if they might have any ideas.
Hope this helps and I pray your little one has nothing serious.