Celiac Disease and IgA Nephropathy

My friend was diagnosed with celiac disease and it was a while before her daughter showed symptoms of it. However, when she did it was fast onset and severe. She was told the symptoms often don't show up until a child reaches 3 or 4 years old and by then a lot of damage can be done. Her daughter is 3 now. she started the whole family (other daughter too) on the gluten free food and they are all doing better. I would have him have blood work 1st and see what it says. He may be the lucky one and not have it but it is beter safe than sorry! A.

I can recommend a regimen that would help you w/your celiacs if you are interested, please email me at ____@____.com thanks

For 15 years I suffered from "colitis" and then was diagnosed with celiacs after a blood test. Someone told me that it could be yeast/candida..... out of desperation I had my saliva tested by a naturopath and found I was full of yeast! And I never even had a vaginal infection.... I did a simple cleanse 4 years ago and since then I can eat anything, including gluten and I NEVER have a reaction, ever! I had asthma for 15 years and it too is GONE. Too bad the AMA/medical community doesn't recognize candida/leaky gut. We all have it to some extent. So many like me are diagnosed with a "lifelong incurable autoimmune disease" and it is a shame.... If I can heal at age 36, so can you..... good luck.

My husband has celiac and what we did was have our 2 girls gene tested (it's just a cheek swab). If the test comes back negative, then you can put your mind at ease. If it's positive, you can do the blood test and watch for symptoms...
Good luck!

Hi C.,

I was diagnosed with Celiac Disease 3 years ago. My question for you is, did they do an endoscopy and biopsy the small intestine? They should take about 6 to 12 samples. The blood test for Celiac results are not alway true. There are alot of false positives & negatives. The true dx. is through a biopsy. You are right about having no symptoms. 80% of the people that have Celiac have no symptoms.

The unfortunate thing is, the U.S. doctors are not as educated about Celiac as they are in Europe. It takes about 9-12 yesars to be dx. in this country but only 4-6 wks. in Europe. I think doctors are becoming more aware of Celiac in recent years.

I wouldn't rush out and get your son tested, but if he does have a blood test at some point in time, you might want to have the doctor add that on the prescription. My kids don't have it. I wouldn't put him on a gluten free diet. I would let him enjoy the foods he wants to eat.

Don't know if you are part of a local R.O.C.K. chapter in your area. I have one in my area but don't get out to their meetings. I did request to be put on their email list which is great. They give me updates on foods, restaurants, cruises, and vacation spots that are gluten free.

Hi C.
I say don't bother.
If you are going to have gluten free around. Do gluten free for family. It is not so hard and you do get used to the diet. If son is not having symptoms perhaps the bit he gets out won't put him over an edge.
The tests may or may not be accurate for him anyway. Ask the MD, are they recommending you test him?
Our daughter has been tested numerous times. Always they say "it is possible, or not likely", or any other phrase that makes it ambiguous. Maybe it is different because of your positive diagnosis.
God bless you with His wisdom
K. SAHM --- married 38 years --- adult children 37, 33, and twins 18

PLEASE, please go and get your son tested! My father had Celiac and it went undiagnosed for years. He went from being quite overweight to severely underweight and malnourished. His intestines had been so severely damaged by all the gluten he was consuming, that he was not getting any nutrition, lost a ton of weight and eventually had a fatal heart attack because his system was so weak (his pulse was at 40 beats per minute by the time he got to the hospital).

I share my father's story to show that Celiac Disease should be taken very seriously. It can cause damage even though there are no signs. It is hereditary. I have had my children tested and they are all fine. However, my brother was tested and found to be positive for Celiac. Now that he has taken gluten out of his diet, he is doing really well (he was having stomach issues as a result).

Bread and bagels are not worth the long term health of your child. Definitely get him tested. By the way, it was explained to me that once my children have been tested negative for Celiac, I do not have to have them tested again. They either have it or they don't. "Evidence" will not show up later in life. It is just always there or it's not.

Here is a website I found with the effects of Celiac (sysptoms or not)...www.celiac.org/cd-what.php

Good luck!