Autistic Child and Sleeping Problems

Updated on January 08, 2010
C.A. asks from Albany, OR
6 answers

My son is five and moderately autistic. He's such a joy to us. We've always had some issues with sleeping, but the last few weeks are just awful. See we also have a four year old, a three year old and a ten month old. There are two bedrooms so two to a room. No other choices right now. The last few weeks hes been waking up between 4 and 5 and getting up ALL of the kids - even the baby. He's even pulled the baby out of the pack n play one time (we put an end to that). The problem is that they usually don't start making any noise for about an hour and at that point all of the kids are fully awake. So about 2 or 3 in the afternoon I have some of the worst behaved and grumpiest kids...except the autistic one who never seems to need sleep!! Any ideas? I've heard of ppl giving 1/4 to an 1/8 of a tablet of melotonin, but is that really safe at this age? We do naps but most days they fight naps and won't sleep. Help!!

I forgot to add that he does work with specialists, but we don't have insurance and can't afford to go to the doctor right now - thanks!

1 mom found this helpful

What can I do next?

  • Add yourAnswer own comment
  • Ask your own question Add Question
  • Join the Mamapedia community Mamapedia
  • as inappropriate
  • this with your friends

More Answers

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

G.R.

answers from Spokane on

HI C. - Are you working with a developmental peditrician or regular peditrician or a general dr? I do know of several moms (friends of mine) who do use melatonin for their autistic kids (this is due to their brains developing different & producing different chemicals in their brains & many times melatonin will help regulate some of that for sleeping). But the best thing that the moms I know said is to work with the specialist/doctors and not just what a health store will tell you. The doctor can help you come up with the correct dosage and give you directions on how to modify that if needed without overdosing. I also suggest that you keep a journal on how he is reacting to any thing that you try (melatonin or other tips & techniques) so that you can clearly see what works & what does not work at this time. Kids are funny, what might not work now might work next week or next year, so keeping a notebook will help you recall these things.

Is your son on an IEP for school? Does he work with any outside therapists (SLP, OT, PSR, IBI, etc), if so these people can also help you develop techniques that will help with your son especially since they would know him personally & can help you modify behavior, environment, etc to help make home life easier & safer. Another thought is to modify the other kid's sleep schedules (to bed earlier to off set the waking up too early).

I also recommend, if you have not done so already, is to find a good parent support group in your area for parents with special needs kiddos. They can be a great source of support as well as referrals to specialists & can help you brain storm additional ways to work with your son. God Bless

3 moms found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

S.H.

answers from Seattle on

My daughter has high functioning Autism and we have had this issue before too. We didn't dose her with any melatonin or anything when she was that young... we did, however, talk to her routinely about coming to get Mommy or Daddy when she couldn't sleep anymore and made it part of her routine. As I'm sure you well know, the way to get kids with Autism to do what you expect them to do is make it part of their expected routine. Give him a sticker or prize every time he comes to get you or your husband and doesn't wake his brothers/sisters when he wakes up. Another thing to do is give him something he is allowed to do instead.

There are also alarms that you can get to let you know when he gets out of bed. They are called patient alarms and run anywhere from $200-$500. It's a pad that you attach to your child's bed that will alert you when he gets out of bed and you can get them, I think, from most DME (durable medical equipment) suppliers. These are not covered by most insurances and are typically used for the care of the elderly or cognitively challenged individuals, but are also used for people with sleepwalking disorders and so forth.

Do you have him involved in any Autism programs in public school? They can really help. My best friend has her four year old Autistic son in public school, even though her eventual goal is to homeschool, because they give him support and the routine that he craves. His behavior at home is better and he is actually sleeping better now. My daughter has also been in special education since she was 8 months old. You can really see the difference in her behavior and sleep patterns when she doesn't have the support that school gives her, even now at 13.

Also, go to DDD (the Department of Developmental Disabilities) and see what their advocacy groups can offer you. ARC is also a great resource and there are Autism support groups and advocacy groups everywhere. Getting involved with these groups is vital, I think, as a parent because it give you a place to seek advice from other Autism moms and many of them are very well educated in how and where to get help for things just like this. One suggestion made to me at one of these meetings was to see if you child has sensitivity to casein/gluten... a simple elimination diet can test for this. It's a change in lifestyle, but well worth it in the realm of sleep and behavior without medication.

I don't know what your financial situation is, but you may also qualify for medical assistance for all of your children. It is vital to your sons success if you can get him started with an occupational therapist at the very least. They can help you with strategies to meet his sensory needs and maybe help you find ways to help him sleep better or longer. I saw a piece of advice about changing his mattress/blanket... I've heard of this. Our OT suggested that we try having our daughter sleep on a magnet therapy mattress pad. They are very expensive so our OT's office offers one to try out to see if it will help before you buy one. It is not covered by any insurance as far as they know. Our daughter's diagnosing psychiatrist automatically referred her to the Childrens Sleep Center because kids with Autism generally do have sleep disorders. They can give you answers too.

I strongly recommend seeing if you qualify for medical assistance. It can help you make sure that you can get the care and therapies your son needs for his Autism. You can also go to Social Security to see if your son qualifies for disability... which includes automatic Medicaid benefits. It can be a huge hassle, but they will also help in getting him what he needs. It's hard to be an advocate for your child, but so worth it when you see the results that are possible with the support of different agencies and parents who, like you, are just doing the best they can for their kids with special needs.

Good luck.

1 mom found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

Z.A.

answers from Seattle on

Speaking of parent support groups... make sure to check out http://groups.yahoo.com/ It's been an INVALUABLE tool for working with my 2e son, even though we share the same Dx. I think overall, I'm on 10 or 11 boards, it's a killer resource. You have to set up a yahoo ID (free) to join a group, but you can peruse their "about us" front page without one. In the group search you can plug in autism, or parenting autism, or even autism and your cityname and find local stuff. The bottom of the about us page has a little graph that shows how many messages per month they have, so you can get a general idea of how active they are before you join one.

I just "found" them about 6 months ago, so if you're already familiar, sorry for overloading on the detail!

1 mom found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.L.

answers from Corvallis on

It is very common for autistic kids to have problems sleeping. Studies have found that there is a good portion of people with Autism to have a shortage of Melatonin production (our bodies naturally make this to tell our body its time to sleep). My niece takes it nightly(she is also autistic)and so does my daughter (she is epeleptic and has a hard time falling asleep).My daughters neurologist had us give it to her. It is safe and you can get it just about anywhere, just look at the dose and they also carry it in liquid form. Since your guy is little I would say the liquid form (dosed for kids) or half (or less depending on weight) of a 3mg tablet. A friend of mine gives her ver skinny 4 yr old half of a 3 mg tablet and he is fine. Oh I forget the measurment, not sure if its mg or something else. Good luck with it!

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

M.S.

answers from Seattle on

Hi Candace,

I might be able to help with the sleeping problem. Many Autistic kids get their 1st full nights sleep by changing to a specific mattress and blanket. It happened for my good friends little girl and then another friends 9 year old with Asbergers. Both kids behavior improved drastically. My friends boy started getting straight A's in school too ;o)-an added bonus. Would you like me to connect you with that information? Just send me an email at ____@____.com and I'll track down some information for you.....

Sincerley,
M. Stankey

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

C.S.

answers from Seattle on

in regards to the Melatonin, I have given it to my son on and off since he was 3 years old. Usually when he is really wired before bed or when he was getting up in the middle of the night. The problem with it though is that it will not keep him asleep only help him fall asleep. So unless you can catch him awake before he wakes up everyone else and you give him a little bit to help him fall back asleep it may not do any good. Also, my 5 year old takes 1/2 of a 3mg tablet. The dr is aware that he gets this and seems fine with the dosage amount. Also, do you happen to have a baby monitor in his room? What if you set one up so that it would wake you up to hear him before he woke up all the other kids? Good luck, that much be tough!!

For Updates and Special Promotions
Follow Us

Related Questions