Hi S.,
I am not a mom (yet), but my friend told me about your posting, and I joined the website so I could respond to you. I am 29 years old and have had alopecia since I was 13. It started as little patches, but I soon lost all of my hair. I did go through many treatsment of various medications, and over about an 18 month period all of my hair grew back. However, once I stopped my treatments I did lose my hair again. Once I came out to Cleveland for college (I am originally from New York), I did go see Dr. Bergfeld at the Cleveland Clinic, who is renowned determatologist, but I decided I didn't want to continue treatment anymore, and continued to wear wigs. It's a very scary time for parents as I know what my parents went through emotionally and mentally not only because they did not know what to do to help initially but they also knew how scared I was. The best resource I can lead you to is the National Alopecia Areata Foundation website, NAAF.org. It's a great website and a wonderful resource. You'll see pictures of all of the kids (and adults too) who have alopecia. Alopecia is considered an autoimmune disorder, and it can range from small patches of hair loss (alopecia areata) to full body hair loss (alopecia universalis or totalis). Please let me know if you'd like more details on my story as far as my treatments, wigs etc. If you ever want to talk to my mom, I know she would talk to you too, so you could get some parental emotional support. Good Luck, and keep me posted on your September appointment.