AFP Testing

Updated on July 13, 2008
C.B. asks from Schenectady, NY
45 answers

Just a quick question...I am 13 weeks pregnant so, close to the time that I need to have the AFP testing done. I had it done for my first two but, when speaking to my Dr, he didn't think it would be necessary if I would not terminate a pregnancy if the baby had Down's. I am just wondering if anyone had opted to have or not to have it done and why. I know that this is a personal decision and I had the first two done b/c my husband wanted it. I just seem to be struggling with this a lot this time around.

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So What Happened?

I did decide to do the AFP testing...I thought if it comes out positive I will not have the Amnio but, will be able to research DS and be more prepared if the baby is born with it. I felt good about my decision but, of course was nervous when they were drawing my blood. I just kept thinking that this was my baby, no matter what she will be my child and I will love her with all of my heart. There is just so much information and so many resourses out there I though I would be foolish if I didn't take advantage of it. My AFP did come out Negative and I did deliver a healthy baby girl in January which I am very grateful for. I am also grateful to everyone who shared their advice and their stories with me.

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M.B.

answers from New York on

Hi C.,
I opted not to have the testing with any of my pregnancies. We were not going to terminate the pregnancy, so it seemed pointless. I thought having the test would just make me stress about the results, so we didn't do them. We have 3 perfectly healthy boys ad we were happy w/ or decision. Good luck!

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C.P.

answers from New York on

Hi,
i would have the test anyway just to be prepared in case there is any problem and its severity. Modern technology is so great, we should take advantage of it!

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L.J.

answers from New York on

I opted not to have the AFP or any other testing even though I was an "older" Mom (I was 37 and 39 when my kids were born). I wasn't going to do anything with the information so did not see the need.

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D.R.

answers from New York on

hi C., this is a very tough issue. it really depends on the kind of person you are, only you and your husband know, and even then, its hard to know beforehand what you would do or how you would feel. i had the afp testing done with my first 2, and everything was fine, and i never had amnio. with my 3rd, i had the test done again, really just as a matter of routine, but then everything was not fine, i got bad results for downs. well, ill tell you that that was the day that everything changed. first of all, my husband and i had always felt that we would never get an amnio because we would never terminate a pregnancy. but sometimes, when having a baby that might have a disability is a real possibility rather than a hypothetical, it brings up very very difficult discussions between you. its very easy to say what you would do when it is not in your face. not so easy when the possibility is very real, and when you are almost 40 years old and have 2 other kids who would likely be caring for this child as adults. it turned out that my husband felt differently than he thought he did, but i knew i could never live with a termination. so you can imagine the horrible discussions that came of this, just a horrible thing to fight about, and this all while pregnant. in the end, he agreed that we wouldnt terminate regardless, which was really how he felt in his heart, but so scared. once that was settled, we then had to decide about the amnio. the termination issue isnt the only reason to have an amnio, there is a lot you can do to be prepared, medically and emotionally, for the baby to make things better for you, for the baby, and for your other kids. in the end, the small risk of the amnio was too much for us, we decided not to do it. so then comes the tough part.... the waiting. it mostly ruined the rest of my pregnancy, the not knowing and the worrying and the what-ifs for the rest of our lives. these test results dont tell you anything about anything. they are a statistical result. and if it is correct, you have no way of knowing if your child will be mild or profound, or anything in between. these have very different impacts on your lives, as you would imagine, and there is no way to know, even from the amnio. my husband and i have both worked with kids with downs, and some of them were the most wonderful, happy kids you ever want to meet, and some of them struggled and suffered every day. so it changes your life in different ways, and as they grow up. i know you know all this, sorry, this just brings me back to all my constant thoughts back then.... what you can do if you go to a sonogram place with the best equipment, is have them do a .....hmmmmm, i dont remember what they called it, but it was a very detailed sonogram where they look for markers of downs, there are physical characteristics that are typical of downs that they can look for. but again, just because they dont see them doesnt mean the baby doesnt have downs. SO in the end, i was a nervous wreck for the rest of my pregnancy, which is very very sad because i love love love and treasure being pregnant, and that was my last. when my baby was delivered, it was my first thought. also very sad, i couldnt stop asking the nurses if he is ok. and guess what, he is just fine, thank G-d. even at our first few doctors appts, i was asking the docs if they are sure he is ok, etc. so, i am now looking at my beauful boy, so thankful every day. but i feel bad because i almost feel like my last pregnancy was taken from me. and, being a google freak, i spent countless hours online during my pregnancy, talking with soooooo many women that had false positives. i even ended up speaking to a doctor turned researcher who went through the same thing and now is developing a bloodtest to determine downs with the same accuracy as an amnio, but no risk. its not available yet, at least it wasnt last year, but maybe look into it? so, after telling you my whole long story, i will also tell you that my sister got lousy results from the afp for both of her pregnancies. she simply said she knew eveything was fine and walked away. and everything was fine, she has 2 healthy kids. so that's why i say it depends on the kind of person you are. she was able to do that, i couldnt.
whatever you decide, i wish you all the best, and i hope you enjoy your pregnancy.

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C.S.

answers from Albany on

Dear C. - I saw your post awhile ago - and was thinking about it for awhile. I had my first and only child at 43 and she has Down Syndrome. I didnt test , didnt believe in it. I think I had my concerns but just couldnt imagine having an amnio and then having to play god. I couldnt deal with it. a friend did do the AFP and it came back positive and was then more confusing for her. She didnt do anymore testing and was accepting of whoever was coming to her. Her first son does have DS.

Its ofcourse a very important personal choice that I believe women should have - to chose, it becomes more painful when you realize there are specific tests to basically designed to eliminate a certain population of which your child is part of.

I'm working on a book about my daughter (shes seven now) and wonderful ofcourse. but i thought it would be nice for perspective parents to see a photo book with some writing, but basically a book about hope and the specialness of a child like my daughter. Its not gloom and doom. I suppose the caveat is if the child has some really serious health problems, life threatening issues, when you already have other children it might be alot to take on. You mentioned working in a cardiac critical care unit.
I'm everyday thankful for my girl and the life we have with her.

anyway, perhaps you've already made your decision. I wish you the best and hope things turn out as you hope. but gifts can come to you in many ways. C.

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L.L.

answers from Rochester on

Hi C.
I had this test done when I was pregnant for my daughter last year. The results came back with her having a 1:12 chance of having Trisomy 18 (3 chromosome 18's). These babies rarely make it through the pregnancy, if they do they are severely mentally retarded, and usually do not live long after birth. I had a secondary ultrasound, amnio, etc. Waiting 4 weeks for the amnio results nearly killed me. And do you know what? There is absolutely nothing wrong with her at all (she is 14 months now). It was THE most stressful situation I have ever gone through. I'm suprised nothing happened to her just from me being constantly stressed for an entire month and actually until she was born! If I had the choice again, I would not have had the test done. It is not reliable. I hope I didn't scare you, but I hope this helps in your decision!

A little about me;

Our family just moved here from Saranac Lake, NY. I am a full time working mom at the U of R. I have 2 daughters 6 years and 14 months. And a great hubby too!

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D.R.

answers from New York on

HI C.,
It is a big decision and my husband and I struggled for awhile too with whether or not to test. In the end we decided not to do the tests because we knew we wouldn't terminate the pregnancy no matter what. Also I have known 2 people who have gotten false positives for Down's and were a nervous wreck throughout their pregnancies for no reason. I wanted to just enjoy my pregnancy, and I did, and I have beautiful healthy b/g twins!! Good luck with whatever you decide to do.

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A.P.

answers from New York on

Something to remember is these tests are not 100% accurate. We didn't have any testing done with either of our pregnancies, I'm pregnant with #2 now. But with our first, because of an abnormal ultra Sound at 20 wks we had to have many ultra sounds. They told us our child would more than likely have Downs, we were told he could be nuralogically impaired, that he could have Edward's (very terrible), and that we should seriously consider 'terminating'. Well, since abortion wasn't an option for us and the risk of pre-term labor was to high in my opinion getting an amnio. we decided to read up on all of these problems and if God choose to give us a special child that we'd do our best to raise him well. We also prayed though for a healthy baby, I didn't start praying for a child with Downs, I'm not sure anyone really would. When my little boy was born 8 days late, he was a healthy 9lbs and perfect. No Downs, no Edwards, no nuralogical problems. In fact he's as smart as a whip at one year. Please, please, be patient and pray. I wish you and your family many blessings, and another healthy baby.

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M.B.

answers from New York on

Hi C.,

Congratulations on your pregnancy! I hope everything goes well for you.

My advice would be beware of test results.....every single test I had done in my last pregnancy came back with a false positive(I'm honestly not exaggerating..by the end of it I reckoned it was some kind of insurance scam), this meant I always had to have the test done again and had an incredibly stressful pregnancy. By the end of it I had no faith whatsoever in the tests.

Regarding the AFP test I told them that I did not want the test as I wouldn't terminate anyway and I had two friends who had gotten false positives and went on to do amnios which turned out with good news of no Downs. I didn't want to go through all of that. Unfortunately they didn't listen to me and did the test anyway, when I went for my next visit she told me...oh your test results are in, everything looks great with the baby. I left the practice later due to other reasons (they called me on the phone and told me I had Hepatitis and that if I wasn't an intravenous drug user and was being monogamous then perhaps my husband wasn't ....and then rang me back 2 weeks later after testing me again and told me I didn't have it and that there must have been confusion with the blood..no apology).

Anyway, I would do whatever feels best for you. Just remember that if you do take the test and the results are not good then try not to get too stressed until they do further tests.

Best of luck,
M..

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S.H.

answers from Rochester on

Hi C.. My doctor told me the same thing, that if I intended to keep the baby even if there was a problem to not have the test. I whole heartedly agreed. Why waste all that time thinking about it if there is a problem? Also, the AFP test is notoriously unreliable- many people get false positives and end up going through an amnio for no reason at all. Follow your heart, if it is something you really want to do because you want to know and be prepared for anything, go ahead and do it. But, to me, if there is nothing you can do about the problem any way, short of terminating the pregnancy, don't do it and enjoy the experience of being pregnant. Even though sometimes it feels like it, it won't last forever! Good luck.

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J.P.

answers from Syracuse on

First let me say congratulations on your pregnancy!! I have four children and refused the AFP test with all of my pregnancies. The doctor was very supportive of my decision. I made it because we would not go through with a amnio test if the results came back as needing one. My mother had a baby born 3 months premature back in 1986 because the amnio she had done caused her water to break. The baby was still born. I didn't want to risk losing the baby for an amnio test. Also we would not terminate the pregnancy because of the results. The level of false positives was too high for me to be comfortable with too. I didn't want to worry my whole pregnancy because of a positive test result and then have nothing wrong with the baby. ( I hope that came out right). Our insurance at the time of my first two pregnancies wouldn't pay for the birth is the AFP turned out positive and we refuse the amnio. But we could refuse the AFP test itself. (crazy I know) Most hospitals are equipped now to handle anything!! So if you don't have the test and your baby needs some extra help or a specialist most hospitals are equipped to handle it or can transport your baby to a hospital that can handle your baby's needs. I hope this helps. Good luck with everything!!

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K.H.

answers from Utica on

Hi C.
I was offered testing with all my pregnancies, and with all I said "No" for just the reason cited. I was not going to terminate the pregnancy, and there is a risk of miscarrying and I would not take that risk no matter how low. Many have been exposed to alot of unnecessary stress b/c of false results. That "no" includes a "no" with the twins conceived when we had been married 20 years and my boys were 13, and 18, and I was 39. Trust me I was thankful I did nothing to disrupt that pregnancy when preterm labor began at 19 weeks. They were not born til 38 but it was a rocky pregnancy but God is so Good and the girls were born well and healthy at 5'11 & 6'8".
Children are a gift from God and I loved my children any and all from the time of conception. My OB's were never surprised by my decision and I simply had to sign a paper that said I was refusing test.
God bless you and you make decisions
K. SAHM married 38 years, my homeschooled twins head to college in the fall and we will have no children at home for the very first time since 3 weeks into our marriage when I became pregnant with our first.

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A.F.

answers from New York on

i only did non-invasive testing when i was preggo. these tests only come with 1-2% risk of miscarriage, but i thought even that was too high for me.

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N.E.

answers from New York on

I refused to do it when I was pregnant with my son. I research everything before making decisions, and the triple screen has a very high false positive rate. Over 50% of the positives are false positve. Why would I want to make myself sick over a test that doesn't even work? I wasn't at risk, I was 29 when I got pregnant. But if someone is at risk, they're better off with amnio. Of course, it's always your decision, and you need to do what is right for you.

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D.C.

answers from New York on

I had 4 children, my 4th at age 44, and didn't opt for the AFP test for any of them since I knew that I wouldn't terminate the pregnancy no matter what the results were. Some people feel they want to know, but I felt it was better to wait and see.

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J.O.

answers from New York on

Because I would never choose to abort my baby, regardless of the circumstances, I opted out of all screenings with the exception of spinal bifida - if they know about that possibility, they make special delivery room preparation. I also know a woman whose AFP test showed Down's, who spent months of pregnancy agonizing, and then had a totally normal baby girl. Good luck with everything, and congratulations!

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C.R.

answers from New York on

I decided not to since I wasn't going to terminate my pregnancy either and some of my friends had had false positive results that made them had some agonizing 2-3 weeks of further testing. In my case money was not an issue as it was covered by my insurance.

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E.D.

answers from New York on

Either way, it would be nice to be relaxed during your pregnancy, or prepared if that is the case. I think your doctor is wrong with this advice.

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M.L.

answers from New York on

I opted not to have it done (signed the paperwork yesterday, actually) because 1) if the test comes back positive, and it's wrong, I'll have spent 6 months getting ready for something that isn't real. 2) If the baby has Downs Symdrome, or anything else for that matter, I will deal with it when the baby is born and not a moment sooner. I won't terminate the pregnancy, and knowing early to "prepare myself" didn't seem like it would help me.

Does that help? I was actually in your same boat earlier on. (I'm due in December.) One of my nurses was pregnant and told me she had opted out of ALL the prenatal testing, basically for the reasons I listed above. That made me feel better - if there's something wrong with my baby, I want to spend these 9 months getting ready to love it, and then if something is wrong...I'll deal with it while nursing the baby, changing the baby and bonding with the baby, not just bonding with a medical chart.

I think that came off a little harsh. I'm still convincing myself I did the right thing. I'm young and healthy and already have one beautiful little girl at home. I like surprises and I have a family to support me, just in case.

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O.S.

answers from New York on

C.:

I had the test done for my first child even though I would not have terminated the pregnancy based on the results. However I feel that having a child with down symdrome is a big responsibility that one should be ready for and the more time you have to prepare the better rather than be surprised at birth. I am 6 weeks pregnant now and again will have the test when the time comes as well as the nuco translucency test at 10 weeks b/c the way I see it if results are negative them I'll be ok and if they are not I will have enough time to let it sink in and prepare for it. Hope this helps and good luck with your pregnancy.

O.

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J.O.

answers from New York on

Hi C.,
I never had the AFP test, but I did have the nuchal translucency done. It is pretty much an in-depth ultrasound where they check the measurements of the neck of the baby. These measurements can then tell you what your odds are of having a baby with Down's Syndrome. My doctor said this was the most accurate test for that. My husband and I never discussed terminating any of our pregnancies if we were at risk, but I wanted to know in case I had to prepare for anything. If you do opt to do this test, it HAS to be done by your 12th week I think.

Hope this helps and congratulations on your pregnancy!
J.

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E.P.

answers from New York on

Congratulations! My daughter is now almost 9 years old. I opted NOT to have the AFP test for two reasons - 1: terminating my pregnancy was not an option for me (we were willing to raise whatever child God had chosen for us), 2: my best friend had a bad experience with the test. She was given a positive result meaning her baby was likely to have Down's. She wasn't going to terminate the pregnancy regardless, but spent two agonizing months waiting for more detailed tests to be done. All turned out fine and her baby was 100% healthy and normal and it a happy 10-year old today. I should also mention that the "expert" doctor she saw for the detailed testing was already talking termination of the pregnancy before the detailed tests were complete. He assumed that she'd go that route if the tests were positive.

My opinion is that if terminating the pregancy isn't an option for you, the test is not necessary. Hope that helps a little. Good luck.

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J.H.

answers from Syracuse on

Hi C. -

I declined the testing for all 3 pregnancies...and I was AMA all 3 times, 35, 36, 39 years old at delivery.

I was told that if the test came back and there was something wrong with the baby, it was not something they could fix in utero...and because I would never abort, my choice was clear.

All 3 kids are fine, thank God...a little stubborn at times, but that's a different story!

Best wishes to you!
J.

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R.L.

answers from New York on

I did the testing with my daughter and I'm doing it again. Even though I would not terminate if our baby has Down's. I would like to know what to expect, and I'd think your doctor would too, in order to be sure you don't need to be prepared for anything at birth and to help get yourself prepared and educated beforehand. Call me crazy, that is something I'd want some time to plan for.

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T.M.

answers from Utica on

why spend the money. if you are going to love your child no matter what, then use the money toward starting a savings acct for that child or something else. My experience with the medical profession is that test results are what they live for, and then they harp and harp and harp. They don't leave it to you as an educated and knowledgeable adult who is able to make a decision for yourself, so why give them amunition. I agree with your doctor. He is one in a million.

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C.F.

answers from New York on

Hi C.. Congrats on baby number 3!!! I declined the AFP testing with both of my sons. there is a high false positive rate in which you would then worry and have to go through additional testing just to find out everything is ok. I was going to keep my baby no matter what; I would not terminate the pregnancy. It sounds that you feel the same way. I did have the recommended ultrasounds. I have two happy, healthy boys! good luck with whatever you decide!!

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T.G.

answers from New York on

C.,
This is such a personal choice, as I'm sure you know how cardiac care is very personal for the patients in your care. When people make these decisions it's often after consideration of the consequences pro/con on both sides of treatment or tests and life consequences thereafter (for you and your child). These are answers that only you have. Those who have faced this scenario, including myself, took their actions for very personal reasons and no matter their actions it is no one elses right, or place, to say it was the right or wrong action for that person/family. I thought I knew what I was going to do ahead of time, but when reality hit I realized there was more I needed to ask myself and REALLY be honest with myself. When I finally asked myself the RIGHT QUESTIONS I learned more about who I was and what was truly important to me. If you're asking others for input, you might also want to take some more time searching inside your soul for what is important to you. Good luck - my best thoughts are with you.

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M.B.

answers from Rochester on

Hi C.,

AFP testing is also used for checking for other birth defects, such as spina bifida. Knowing ahead of time can help prepare emotionally and organizationally for the birth if the baby does have some problem.

May God grant you and your baby a healthy pregnancy and birth!

M.

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R.T.

answers from Syracuse on

Hi C.

I opted not to have the AFP test done with all four of our children, since the outcome would not have caused me to change my mind about having the baby. At that time, 13 years ago, the test had a higher rate of false positives, so my doctor didn't view it as a very reliable indicator anyway.

Since I was over 35 with all pregnancies, I also was a candidate for an amnio test but refused that as well since I had a history of miscarriages and didn't want to risk that. All four of our children are very healthy.

Good luck!

R.

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J.V.

answers from Syracuse on

I chose not to have the testing done with either of my two children. We figured, why bother, regardless of what the results were, we were not going to terminate and would love the child no matter what. Sometimes the tests are false and the baby is fine, so we decided not to put ourselves through the turmoil throughout the pregnancy wondering 'what if' all the time.

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M.L.

answers from New York on

Hey C.,
I second what Michelle said....I did the first trimester screening, blood work and ultrasound, as my sister-in-law has Down's...my OB said that her having Down's would not affect my chances of having a child with it but I still needed that reassurance...My numbers were also very low so I didnt do any further testing....I did have a rough pregnancy with high blood pressure and gestational diabetes, but I gave birth to a healthy 5 pound 4 ounce baby girl, who just turned 2 in April...Hope this helps!!
Meg :)

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G.D.

answers from New York on

I chose to not do the test since it would not change my decision about my pregnancy, and since the test is not always reliable. I knew that even if it came back positive, I wasn't gong to do an amnio, and I would not terminate the pregnancy. I felt the test would b ea wast for me to take. I was bery leary about the reliablilty too. There are a lot of false positive tests, and I know of one case where there was a false negative. My friend was told the test was negative, and the baby was born with down's syndrome.

Best of luck and enjoy your pregnancy!!
G.

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J.C.

answers from Utica on

I have two children and decided not to have any of the testing done for either of them. It didn't matter to me becasuse I would never terminate a pregnancy. I agree with the mom that said she wouldn't want to bond with a medical chart that was the best saying I have heard. Both my sons were born healthy and happy. My youngest son developed a seizure disorder when he was 8 mnths old and we are dealing with that now and also dealing with the delays he has in communication, cognitive and all that jazz. It is a day by day struggle for all of us but we take it day by day.

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M.Q.

answers from Albany on

I had my last two children when I was over the age of 35, when the usually want to do the testing. Since I would never consider terminating, my doctor told me I did not need to take the tests. I chose to believe in my heart that my child would be healthy, keep a positive outlook and never even consider negative thoughts. I am happy to say that both all of my children are fine. Why cause yourself extra stress when you dont need it. Good luck!

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A.C.

answers from New York on

I did this test with my first but not my second. It came back positive with my first (who is perfect) and I have a fertility issue so I never know exactly when I get pregnant. This test is only good if you know and even dating with ultrasound is not perfect for this application. So, with my second I did not have the test because of that and because the older your are the more likely you get a positive that might be false anyway (according to my good friend the pediatric genetics doc). There are many other tests now that are better indicators for some things - not including amnio. They can do a lot with ultasound. Good luck.

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J.L.

answers from New York on

C.,

I used to be a clinical lab tech who performed the AFP triple screen test (now I do research). I think your doctor is being irresponsible by telling you that. You are a nurse, so you know that doctors are not infallible.

First, from the other responses, I need to clarify that the AFP test is a BLOOD TEST. It is not an Amniocentisis. It only has the risk associated with getting your blood drawn.

The AFP test actually looks at the level of 3 different things in your blood. When that level is compared to your age, weight, gestation and ethnic background, it gives you a sceening result. This basically just tells doctors if you need additional testing. Besides Down syndrome risk, it also gives risk factors for neural tube defects (spina bifida, ananecephaly, gastrointestinal problems, included).

I understand that you would not terminate if you screened positive and further testing founds something (I would not either). But this test would only tell you if further diagnositic testing was needed. If, God forbid, further testing showed a neural tube defect, then the doctors would know to schedule a C-section, so not to increase the damage to the baby's spine with a natural birth. Or if an ultrasound showed a heart defect, cleft palate, other problem, a team from neonatal surgeons, could be standing by.

It is your decision, of course, but the tools are available to us today to be ready for a child who has special needs. The tools are not there only for the decision to terminate.

Good Luck. The odds are everything would be fine anyway.

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M.H.

answers from New York on

Hi,
I am also newly pregnant and am 12 weeks. We just decided not to do the test. We knew we wouldn't terminate and pregnancy brings so much stress in and of itself that any worries you can eliminate can only be beneficial to you. Why go through the test? If it's a negative you will wonder if it's true and if it's a positve you will struggle with that the whole nine months. Love your baby with or without any issues that it might have and you don't need tests to tell you that. Hope this helps!! And good luck!

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G.L.

answers from New York on

I had it with first (2) pregancies but, not with my third. The reason is with my second the test came back with a positive result of a horrible condition. Had me and my husband quite upset and nervous. The doctor wanted to do an amnio test to confirm but, there was a chance of losing my baby from the test. After going further with the doctor with questions, I learned that the test is not a medical result, it is a statistical result. I chose not to do the amnio because I wanted to hold my baby and see him thru his possible short life of 2 years. I couldn't see aborting him either. Well, he was born and perfectly healthy!!!!! After that experience, I opted not to do the test with my third baby. Only do the testing knowing it is not a medical result but, a statistical result. And, only do the testing if you would want to abort the baby. It has to be your choice....no one else's!!
Good luck and let me know how you make out.

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M.P.

answers from New York on

I never was tested for either of my children even tho I am considered and older "at risk" mother with both. My kids are perfect and I never spent a day worrying about the VERY common false positives of those tests. My doctor asked if I wanted the test, I declined, and he was very happy with me. I walked away feeling strong and never really thought much about it after that. If you wouldn't consider termination, then go foward. You will love your baby no matter what, because it is yours, a snuggly little gift.
You are only "stressing" out because ALL pregnant women stress out. Make your decision ans stick with it and feel strong. I got some flack from co-workers who insisted on having the test themselves but some of them spent the last 7 months of (what could have been a great pregnancy) frantic because the tests came back positive. They all had healthy babies.
Good Luck-don't torture yourself!
M.

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A.D.

answers from New York on

You don't say what your age is and whether the test is just AFP or part of the "triple screen". The triple screen also detects neural tube defects and Drs might alter your care or delivery if they found a problem. Here's a link with a little info on the tests:
http://pregnancy.about.com/cs/afp/a/afptesting.htm
I was 35 when I was pregnant. I declined the amnio because the risk from the test matched the risk of a genetic problem due to my age. I used the triple screen and a "genetic ultrasound" because these are non-invasive and pose no risk to the baby. (there is a slight risk of false positive from the triple screen, but this is greatly reduced by using it in combo with the ultrasound). Discuss all your options and risks with your dr and make the decision that is best for you.
Congrats on your 3rd pregnancy and best wishes!

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J.C.

answers from New York on

I think that testing is a good idea so that you can prepare and educate yourself should there be an issue. I would not term a pregnancy based on Downs or something else but I would want to know what to expect and what kind of questions to be asking once the baby is born. Have a great pregnancy and try not to worry!

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S.M.

answers from New York on

Hi C.-
Congratulations on your pregnancy. I did the AFP testing with my first child even though I wouldn't choose to terminate if something was wrong. Here's was my thought process....The AFP test also screens for spina bifita which can be cured in utero. I also thought that if the baby had Down's I could set up early intervention services to start as early as possible and that I might be able to get some feedback from support groups. Good luck with your decision!

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S.S.

answers from Binghamton on

Are there any steps that would need to be taken if the test showed positive for birth defects? i.e. with spinalbifita, for example, they sometimes undertake surgery in the womb to correct it and prevent brain damage, as far as I know. That would be information I would personally want to have so I was sure I had done everything possible to give my child the best start in life.
So if it would have an effect on your preperations for delivery, on treatment during your pregnancy, or post-natal care, I would consider it. If your doctor sees no need though, and you trust his expert opinion, then this seems not to be the case.

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K.M.

answers from Albany on

My AFP came back positive with my twins (which turned out to be false) but lead to lots of ultrasounds and constant care for my babies. I knew I would not terminate, but wanted to have support and resources in place in case one or both had Down's. At delivery we were fairly sure that both girls were fine - which they were - but even with all of the false positives I had (nearly every test) I would do it all again for the peace of mind that came with researching and knowing about all of the possibilities. Having twins and learning that they were girls was enough of a surprise, I didn't want to be surprised in the delivery room! Good luck!

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N.M.

answers from New York on

One of my good friends just had a Down's baby. She had the testing which was positive then a level 2 u/s that was negative. She breathed a sigh of relief, then ended up having a Down's baby. It was a great deal of grieving but now she and her family are doing better. But she said that it would have been much easier to prepare her kids, husband and herself if they had known for sure that she was Down's. They love her to death now, but there is a whole new set of expectations for the future. She's a beautiful baby, I wish you luck with your new addition.

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