Advice Needed! My Daughter Almost 7 Keeps Saying Thinks Look Really Small!

Updated on April 27, 2016
K.B. asks from Alamogordo, NM
5 answers

So for the last couple of months it started at bedtime every now and then and now it's every night and almost every hour during the day she will say everything looks really far away and small she gets frightened and cries of its a bad one which she says everything looks small if it's not a bad one just things in the distance look small. Opticians have given her all clear dr said eye nerves are all done now referred to paediatrician at the hospital but could take months for an appointment apparently. It's really affecting day and night activities and now school too any advice would be great I don't know what to do to help her!

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So What Happened?

Hi all thank you for all the answers!
She has an appointment for specialist at the hospital but not until July!!! That was on an urgent request. Luckily it doesn't seem to be happening all through the day just afternoon evening once or twice.
I had already googled Alice in wonderland syndrome which is what I'm pretty convinced it is. If anyone has any experience with this I would really appreciate some feedback as the dr had no idea.
Many thanks all
K. xx

More Answers

W.W.

answers from Washington DC on

Welcome to mamapedia!

Your daughter needs to be seen by an OPHTHALMOLOGIST...NOT a optician. There is a HUGE difference between the two. She doesn't just need her VISION checked, she needs an MRI and other tests done.

She needs to be tested for macular degeneration and other diseases of the eyes. The Wilmer Eye Institute http://www.hopkinsmedicine.org/WILMER

Here is a Dr in New Mexico http://hospitals.unm.edu/eyes/physicians/rose_linda.html

Call them and get her an appointment.

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P.K.

answers from New York on

Ophthalmologist now not optician!!! ASAP.

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M.G.

answers from Portland on

I'm not sure I follow. She thinks things look small and far away even though they are near?

An optician is someone who fits you with glasses etc. Has she seen an optometrist or even ophthalmologist? That's where I would start. It shouldn't take that long to get an appointment with one. They are the most specialized in eyes.

I get migraines which distort my vision. Not so much small - but there are syndromes that do this - one is the Alice in Wonderland syndrome. Google that. It makes things appear smaller.

I see neurologists for my migraines because I have so many non-headache related issues as well as the pain. A lot of things become distorted for me - from vision to hearing, etc.

That's very possible as they often begin in childhood and also before bed.

https://en.wikipedia.org/wiki/Alice_in_Wonderland_syndrome

Good luck - keep us posted.

Added: I should add, migraines are a blood flow/spread thing over the brain. You do not have to have any pain. I often don't - just weird vision/smell/noise sensations or distortions. My husband gets visual ones (sees shapes) and has no pain either.

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D.B.

answers from Boston on

Another vote for having her seen by a physician, not an optician. Even if you meant she was seen by an optometrist, who can rule out certain things, I think an ophthalmologist (who is the only one who is an MD) would be absolutely indicated. I'd ask the pediatrician to cut through some red tape for you at a children's hospital, or at least get you to a qualified ophthalmologist in an office setting who can then, as needed get her in for any tests.

You could also get in to see a therapist who specializes in children to help deal with her fears. That might help you get through any medical visits in your immediate future, but also address whether this is an anxiety type of reaction vs. a true visual impairment.

I'd also ask someone from the school (such as a school psychologist) to sit in on part of her school day to see if certain types of activities trigger her fears or if it's more generalized. I'd want to know if anything distracts her from it - which would imply it's not there all the time.

All of this info should be documented with dates, amount of time she's observed, and notes by the professionals so it can all be shared at appointments (what tests were run, what ruled out, what the behavior patterns were, etc.). Get yourself a good 3-ring binder and a 3 hole punch and carry the info with you from professional to professional.

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D.N.

answers from Chicago on

I would see if you can get her in for an emergency visit with an ophthalmologist at a children's hospital. In my area, it takes months to get an appointment--the shortest wait time was 2 months. But, if you can spend the day, maybew you can go in for an emergency visit. My husband had to take one of my girls in because she was having an allergic reaction and the whites of her eyes were deep red. They said it could take 3 or more hours but they were seen and done in 2 hours. Luckily it was part of her allergy.

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