Anyone Have Any Insight...

Updated on September 26, 2011
J.U. asks from Indian Head, MD
7 answers

So I went to my OBGYN at the end of July my cycle had changed from 26 days to 23 day (for 3 months straight). I was also experiencing alot of pain and just felt whiped out all the time. My husband and I were trying for another baby with no success for 5 months prior to this. I was diagnosed at 18 with endometriosis and a fibroid tumor, I was also told I had a softened uterus. I have an awesome boy who is almost 6 so I am very fortunate! SO I got blood work done and I failed an ANA. At first the doc had her receptionist tell me I tested positive for Lupus. I was FREAKED out!! Didn't even know they were testing me for that. So they said they would do a titer to see what type. They had issues with getting me the results (long story, I have switched docs) they came back and said I tested positive for Sjodrens Syndrome and told me to see my primary. I had gotten and external and internal sono that showed nothing, everything normal. I went to my primary he did his own blood draw and the test came back the same. He did rule out Lupus but not Sjodrens. He said that it was such a low reading that if I wasn't having symptoms not to worry and he will see me next year for my physical. As far as my female issues I went to another OB and he sent me for an MRI of my uterus. He told me that it showed I had a cyst on one of my ovaries and that I had adendomyosis. I want to get some feedback from other Momma's who have had success getting preggers and how did you cope with the pain and mysery associated with the two diseases? Also I was curiou, more of an opinion, do you think it is possible to get a cyst on your ovary, within weeks of the sono and the MRI? Any stories or insight is much appreciated! Thank you Mommas :)

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K.L.

answers from Savannah on

I don't know about any of the other medical issues you have been experiencing, but I do know that ovarian cysts are usually nothing to be concerned with. I had them in my early 20's. Ovarian cysts are so common that usually most women don't even know they have them. They are generally pain free, and are removed with your menstrual cycle. I was having pain in my ovary and when they checked it out, they found a cyst. They watched it's size for a few months and there was no concern. Sometimes, they can grow to be the size of fruit and then require surgical removal but in most cases, the body takes care of it on it's own. I do think that is possible to have a cyst show up in a couple of weeks, and also it might have been there but too small to detect. They do not affect fertility, which is a plus!

1 mom found this helpful
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C.B.

answers from Boston on

I have had a cyst that caused me to have 21 days of bleeding one time, I am in peri-menopause and the doctor said it was not unusual. Since your cycle changed there is indeed some change in your hormones (not necessarily indicating something bad) and changes in hormones cause cysts as far as I know (I am not a doctor). Here is a lot of info on cysts, what types there are and what causes them.
http://www.emedicinehealth.com/ovarian_cysts/article_em.htm

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K.H.

answers from Richmond on

sounds like the first doctor x rayed your wallet first, when he claimed you tested positive for a diease without bothering to re check his results first.more then likely, he farmed out the testing to some first year flunky, who blotched the test, then rather then doing the test again, he took it upon himself to decide that you tested positive for the possibility of testing positive, rather then actually testing positive for anything. find another doctor, and report this village idiot in a lap coat to the medical board. vast majority of doctors theses days dont bother to actually run the results of tests themselves, they look at the probability of the person having a diease, then they let some flunky do the tests.but not before x raying your wallet first. been there. done that
K. h.
first off sjorens, or however its spelled, only shows up in people of nordic descent, lupus, on the other hand, doesnt discriminate. more then likely, the good doctor that you went to decided to test you for a diease that you might, maybe..test positive for IF he purposely ran the test to be much more sensative, it would be like running a very sensative test for opiates, two days after you had a poppy seed bagel, of course its going to come up positive, because the doctor purposely made the test more sensitive.go to a different doctor

1 mom found this helpful
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L.V.

answers from Miami on

First thing, both Lupus and Sjodrens are autoimmune disease, as you must already know. You need to see a specialist in that area, not just your PCP. Your PCP may know something but someone who specializes is the way to go. This Dr. will guide you regarding any future pregnancy. They will most likely tell you to see a reproductive specialist, whom they will work with, as the meds you may need to take if you have an autoimmune disease can be harmful to a fetus. My mom had Lupus, I know what I am talking about here.
Now, about the cysts, yes they can develop very quickly, usually mid cycle and most women get them. They tend to disappear after you get your period. The Dr. may want to do a follow-up sonogram just to make sure that it disappears or simply didn’t grow. If it does grow they will monitor the progress before they suggest removing the cyst. I have Polycystic Ovarian Syndrome (PCOS) so have dealt with many cysts; so again, I know what I am talking about here.

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V.C.

answers from Dallas on

In addition to seeing the appropriate hc professionals, get on a good nutrition program.

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L.M.

answers from Washington DC on

Ovarian cysts can happen at any time. The Sjodrens being autoimmune can't be diagnosed with just one test. There are a number of tests done and interpreted to come up with the diagnosis. Saying that, you might want to look at your diet to help boost your immune system. Basic things such as eliminating artificial sweeteners, colors and flavors and processed foods from your diet. Plenty of good quality water, fresh produce and EFA's. I would contact Johns Hopkins, as they have many experts in this class of syndromes.

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J.C.

answers from Richmond on

I don't understand how you could possibly test positive for sjogrens. My understanding is that there is no definitive test for it, but a series of tests checking your moisture glands..eyes, mouth, etc. It is autoimmune and that should be checked if you were to get pregnant. You should see rheumotologist. But let me give you a little warning... I have found out that my insurance company (anthem, bc/bs), while it will continue to insure me on my current policy, if I'm actually diagnosed with sjogrens then it is a lifetime denial for any new policy should I need to switch policies. Scary... Gotta love the power of the big corporations! Anyway.. I don't know anything about cysts at all. But it sounds like you need one central doctor to work with you and all the different types of doctors to come up with a plan. Good luck...

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